Update 1/27/11: Another link with PANDAS IVIG trial information and details, including the medication and dose.
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24 comments to Yale-NIH Details on PANDAS IVIG Clinical Treatment StudyLeave a Reply |
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Just learned of PANDAS when looking up strep info. My son is 10 yrs old and has had his share of strep…some episodes with obvious severe symptoms but numerous times very asymptomatic with no fever, just slight sore throat & generally under weather. Most of those times the doctor said he’s fine but I insisted on rapid strep and yes he was positive. I wonder if strep went by under the radar other times. He is very argumentative and trouble focusing on homework, seems to have some OCD. With a recent bout of strep, it was like someone flipped a switch – on amoxicillan my son was calm, focused, polite, agreeable 24/7. The treatment was 10 days. He is usually this way when he feels really sick with fever and I joke that he doesn’t have the energy to argue with me. His calmness, focus etc lasted for at least 2 1/2 weeks. He then came down with another bout of strep within a week of last amoxicillan dose and was put on Keflex for 10 days. His usual oppositional behaviour returned duringt the end of the second treatment. Does this sound like it could be PANDAS?
Lee, we cannot give an opinion if a child is possible PANDAS. In regards to your question, a child can have bouts of strep with the parent never knowing it. Also, some articles have cited that perhaps kids have different thresholds for when the PANDAS reaction may finally happen. The fact that your child’s symptoms improve with antibiotics, leads me to highly suggest you see a physician that is familiar with PANDAS.