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The research study Neurocognitive functioning in youth with pediatric autoimmune neuropsychiatric disorders associated with streptococcus shows that neurocognitive functioning can be impaired with children who have PANDAS. This study, done by Drs. Murphy, Storch, Lewin and Mutch in 2011, showed that neurocognitive impairments (including visuospatial recall memory) can be significantly impaired in PANDAS youths. . . . → Read More: Research: Neurocognitive functioning and PANDAS A new PANDAS related case study has been released titled A case of PANDAS with Kleine-Levin type periodic hypersomnia. In this abstract, it talks about an 11 year girl who was diagnosed with PANDAS and Kleine-Levin syndrome (KLS). KLS is a neurological sleep disorder with a variety of accompanying symptoms. Upon beginning prophylactic penicillin (we . . . → Read More: Case study: PANDAS and KLS A benefit concert being held in Solon, Ohio this coming February is featured in the news article Benefit to help fight difficult pediatric disorder PANDAS . And it is being hosted by a 7th grader diagnosed with PANS/PANDAS!
“Songs of Broadway – a P.A.N.S. Benefit Concert” When: Sunday, February 12, 2012 Time: 2:00-3:30pm Where: . . . → Read More: 7th Grader Hosts PANDAS Benefit Concert
Arizona PANDAS Parent Networking Meeting! This will be their first ever meeting for parents that have children with symptoms of PANDAS or Diagnosed with PANDAS. Where: Mimi’s Cafe ~101/Desert Ridge Mall Time: 3:30 PM When: 02/04/12 RSVP to: Kari Kling azpandas1@gmail.com Deb Lowe debloweazpandas@gmail.com Do you have an upcoming support group or networking meeting? . . . → Read More: AZ PANDAS Parent Networking Meeting 02/04/2012 Welcome to the PandasNetwork.org Newsletter January 9th, 2012 Dear Families, Here is wishing all of our family’s a Happy and Healthy 2012! I was discouraged at first having to write on this paper, “Moving from PANDAS to CANS” by Dr. Harvey Singer, et al – first thing in 2012. However, I’ve re-thought it . . . → Read More: January Newsletter PANDAS awareness in the news directly helps others as seen by this new article Family shares experience with illness linked to strep. The article interviews the Van Nes family and how the recent LA Times article, Childhood disorder prompts study of infection link to mental illness ,enlightened them on the possible cause of their son’s . . . → Read More: The Van Nes Family: PANDAS in the News Dr. Rosario Trifiletti on "Kids First" Dr. Rosario Trifiletti and parent Maggie Glynn are interviewed by “Kids First‘” Dr. Rosalie Greenberg, M.D. in two new videos about PANDAS. The first video, PANDAS 1, discusses an overview of the disorder and a parent’s perspective. The second video, PANDAS 2, discusses the controversies surrounding the disorder and . . . → Read More: Dr. R.Trifiletti/Kids First Videos |
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