Newsletter

September 2018 BREAKTHRU GENETIC RESEARCH in PANDAS PATIENTS Your Donations Hard at Work

A Pivotal Study by the Agalliu Lab of 44 patients (22 with SC and 22 with PANDAS) provides Crucial Initial Evidence that strep bacterium are conclusively at work in PANDAS.

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September 2018 PANDAS DOES NOT EXIST! Your ACTION NEEDED 2018

PN FACEBOOK POSTED THIS OUTRAGEOUS SPEECH (Sept. 7) BY DR. DON GILBERT SAYING PANDAS DOES NOT EXIST. WRITE A COMPLAINT.

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July 2018 “20/20” Report on PANDAS

Friday’s Broadcast Investigates the Controversial Disorder Known As PANDAS and the Desperate Search for Answers

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June 2018 UK Conference & University of Arizona

New PANDAS clinic in Arizona and European Conference

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April 2018 Columbia Conference and Other

Highlights from the Columbia Conference in NYC!

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PANDAS-PANS Awareness Day

AWARENESS ACROSS THE WORLD! the film, your family, your voice, READ HERE this Final Week

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PANDAS-PANS $200k Research IMPACT

PANDAS-PANS & AE awareness began in earnest in 2013 when PN was founded. Our Board of Directors recognizes we must UP THE EFFORT to gain acceptance. This October each of your efforts big or small REALLY DO MATTER!

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July 2017 JCAP Treatment Guidelines 

The expert consortium of PANDAS-PANS physicians have written guidelines for treatment based on patient cohorts at Stanford, Univ. of Missouri, Yale, Harvard, Georgetown and the NIMH.

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June 2017 Denmark and South Africa

Please read these studies from Denmark and South Africa carefully! These papers for the first time show evidence of PANDAS-PANS in large populations.

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MAY 2017

The month of May is Mental Health Awareness month. It is estimated 1 in 4 people will be touched by mental health issues themselves or in their families. Read more using the link below!

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FEBRUARY 2017

Annual Awareness Event in PA raises $18,000 including a corporate match! Read more using the link below!

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DECEMBER 2016
Finding Hope as a Community: Facing the Darkest Side of OCD

This is a discussion following the tragic loss of life in December 2016 of Max Aaron Wallace (age 13) — a child diagnosed with PANDAS.

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