We are pleased to announce that the efficacy of IVIG in PANS Children will be reported at the National American of Academy of Pediatrics (AAP) Conference (Oct 25-29, 2019–Louisiana). This successful research is the result of a collaborative trial by Drs. Maeve O’Connor (North Carolina), Roger Kobayashi (Nebraska), and Isaac Melamed (Colorado). The abstract is entitled, Benefits of IVIG in Pediatric Acute Onset Neuropsychiatric Syndrome (publication pending). Additionally, Dr. O’Connor will discuss this work at the PANDAS Network Conference in Wash DC, Sunday, October 6th. (register here: http://encephalitisconference.pandasnetwork.org/)
This research demonstrates the positive effects of IVIG in a cohort of 21 children. Also, we are happy to share that from this work, larger national and international IVIG studies will follow in 2020. PANDAS Network is a proud advocacy partner of this project and will work to disseminate information about this project and promote this groups’ current and ongoing research.
These findings will also be reported in three additional meetings: European Academy of Paediatrics (EAP), European Society of Immunodeficiencies (ESID), and Immunoglobulin National Society (IgNS).
This is a hopeful time for our children and for the future of PANS-PANDAS Treatment! Thank you for your steadfast work doctors!