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Media Library

A PANS Child Helps with Awareness

PANS child, Greg Davidson, was a source of inspiration along side his doctor, Dr. Jan Kirwinsky in Dr. Jan Kirwinsky & Greg Davidson: PANS Disease 2/20/12 on wkyc.com.

In the interview an overall explanation of PANDAS and PANS is given including how it can be confused with other disorders and how strep and other bacteria can . . . → Read More: A PANS Child Helps with Awareness

Parents Magazine Article on PANDAS

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Parentsmagazine just issued the great article focusing on PANDAS, PANDAS: A Scary and Controversial Disorder.

This 5 page article includes personal stories such as the Bossman family and Diana Pohlman, founder of PANDAS Network.org. It also discuss the various possible causes that may cause the disorder to surface.

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Some interesting information is . . . → Read More: Parents Magazine Article on PANDAS

The Suthar Family: PANDAS in the News

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The Suthar Family bring awareness to their son’s struggle with PANDAS in Pandas Illness / Joshua’s Missing Peace. The interview begins by referring to multiple families in the St. Louis area that have been diagnosed with the disorder and their difficult time finding help.

The video then branches off to an one on . . . → Read More: The Suthar Family: PANDAS in the News

The Nelson Family: PANDAS in the News

The Nelson family shares their experience with PANDAS in Strep virus in kids linked to OCD, Tourette’s.

In the WKRN Nahsville story, the Nelson family explains how her son’s sudden onset of tics and OCD occurred after a H1N1 infection and multiple bouts of strep.

It took a dozen doctors, a book, and an out . . . → Read More: The Nelson Family: PANDAS in the News

Save the Date! PANDAS Parents Symposium 04/28

SAVE THE DATE!

 

Bay Area PANDAS Parents Symposium Saturday April 28, 2012 10am-5pm Embassy Suites, Burlingame CA (by the San Francisco Airport )

 

Details on how to RSVP will be coming soon! . Keep up to date by visiting them at PandasParentSymposium.blogspot.com   . . What to Expect: A full day of . . . → Read More: Save the Date! PANDAS Parents Symposium 04/28

AZ PANDAS Parent Networking Meeting 02/04/2012

 

Arizona PANDAS Parent Networking Meeting!

This will be their first ever meeting for parents that have children with symptoms of PANDAS or Diagnosed with PANDAS.

Where: Mimi’s Cafe ~101/Desert Ridge Mall

Time: 3:30 PM

When: 02/04/12

RSVP to: Kari Kling azpandas1@gmail.com Deb Lowe debloweazpandas@gmail.com

Do you have an upcoming support group or networking meeting? . . . → Read More: AZ PANDAS Parent Networking Meeting 02/04/2012

The Van Nes Family: PANDAS in the News

PANDAS awareness in the news directly helps others as seen by this new article Family shares experience with illness linked to strep.

The article interviews the Van Nes family and how the recent LA Times article, Childhood disorder prompts study of infection link to mental illness ,enlightened them on the possible cause of their son’s . . . → Read More: The Van Nes Family: PANDAS in the News

Dr. R.Trifiletti/Kids First Videos

Dr. Rosario Trifiletti on "Kids First"

Dr. Rosario Trifiletti and parent Maggie Glynn are interviewed by “Kids First‘” Dr. Rosalie Greenberg, M.D. in two new videos about PANDAS.

The first video, PANDAS 1, discusses an overview of the disorder and a parent’s perspective.

The second video, PANDAS 2, discusses the controversies surrounding the disorder and . . . → Read More: Dr. R.Trifiletti/Kids First Videos

The Riebman Family: PANDAS in the News!

 

The Riebman Family rounds out 2011 with another PANDAS awareness piece.  The FrederickNewsPost.com discusses the experience of Christopher Riebman in Mount Airy family contends with rare disorder.

The article touches base on Christopher’s presentation of symptoms and the family’s attempts to find a diagnosis and treatment. Christopher went from being MISDIAGNOSED with Tourette’s to having . . . → Read More: The Riebman Family: PANDAS in the News!

PANDAS Parent Leads Letter Writing Campaign

Together, we can make a difference

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Amy Joy Fishman Smith, NP, MS has experienced PANDAS first hand with her own child and now she has taken on the job of helping other children by inspiring and working at the Hill Park Medical Center‘s PANDAS/PITAND clinic in Petaluma, CA. Amy sees day in and . . . → Read More: PANDAS Parent Leads Letter Writing Campaign