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. . Our AMAZING parents have just informed us of an upcoming 5K and 1 mile walk/run in North Carolina that will help wonderful organizations, including PANDAS Network.org, will take place on May 5, 2012! To register for this event and for more information, please visit the event’s website . Cary/Raleigh/Durham Locals please come out to support . . . → Read More: NC 5K Fun&Run to Benefit PANDAS Awareness 05/05/2012 
A press release has been issued for the upcoming PANDAS Parents Symposium on April 28th in California! Parents of PANDAS Children Seek Support at April 28 Symposium Because of the challenges parents face in getting support and care for their children, the symposium will focus on diagnosis and treatment options, current PANDAS research and how to . . . → Read More: PANDAS Parents Symposium Press Release The news article, Families fight with PANDAS, is the story of the Pendergrafts and Poarch families and their journey with PANDAS. Beginning with a diagnosis of Asperger’s and then PANDAS, Bridget Pendergraft recalled how, “it was literally like somebody flipped a switch and all of this came on, totally out of the blue…We were scared … It was . . . → Read More: The Pendergrafts & Poarch Families: PANDAS in the News NOVA/MD/DC PANDAS Support Group Meeting When: May 9, 7:30-9 pm at Where: St. Raphael School, 1513 Dunster Road, Rockville, MD 20850, Duffy Center – Room 4. Topic: Insurance Coverage for IVIG and other treatments. If you wish to attend this support group meeting or have additional questions, please contact the coordinator, Teresa, at teechamp@gmail.com.
. . . → Read More: Virginia/Maryland/DC Support Group Meeting 5/9/2012 . AZ PANDAS Parent Support Group Meeting When: April 21, 2012 Time: 1:00pm Where: Coco’s Restaurant, 4700 North Scottsdale Road, Scottsdale, AZ 85251 RSVP: Please rvsp if you plan to attend this meeting, by sending an email to azpandas1@gmail.com If you have any additional questions about this meeting or group, contact Kari at azpandas1@gmail.com. . . . → Read More: Arizona Support Group Meeting 4/21/2012
From event organizer: Amy Joy Smith, Nurse Practitioner . PANDAS Parents Symposium is very excited to hold the first-ever PANDAS conference in California for families and interested physicians! Registration is $55 and includes a full day of speakers and dialogues, from 10am – 5pm, Buffet lunch and afternoon refreshment included.
. Some topics of . . . → Read More: Registration Open for California PANDAS Conference . . Across the nation, PANDAS families have been reaching out to the media to spread continued awareness and edcuate the public about PANDAS and PANS. The Nawara family from Naperville, IL is now added to that list of people who are opening up about their experience with the disorder in the article “Mom . . . → Read More: The Nawara Family: PANDAS in the News
“You have a treatable and perhaps preventable form of mental illness… While we’re debating, these kids could be treated.” -Dr. Susan Swedo . . The ”must read”, informative article Sudden OCD in kids? Culprit may be strep throat, other infections appears in the Health section on TODAY (msn) discusses PANDAS/PANS. The . . . → Read More: PANDAS Article in Health Section of TODAY In their efforts to raise awareness for PANDAS and PANS, the IOCDF ( International OCD Foundation) has issued their first PANDAS/PANS PSA’s and press release! . The newly released Public Service Announcements is done in two installments. The first is by Dr. Michael Jenike, Chair of the IOCDF Scientific Advisory Board. The second is done . . . → Read More: IOCDF Releases Public Service Announcements PANS child, Greg Davidson, was a source of inspiration along side his doctor, Dr. Jan Kirwinsky in Dr. Jan Kirwinsky & Greg Davidson: PANS Disease 2/20/12 on wkyc.com. In the interview an overall explanation of PANDAS and PANS is given including how it can be confused with other disorders and how strep and other bacteria can . . . → Read More: A PANS Child Helps with Awareness |
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