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. After a long wait, THE White Paper is out! To be exact, it is titled “From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)”. Dr. Swedo herself sent the paper to PANDAS Network.org’s founder, Diana Pohlman, and gave us permission to pass it on to . . . → Read More: Dr. Swedo’s White Paper on PANDAS/PANS is Released!
In the Summer 2011 newsletter, the IOCDF brings continued awareness to PANDAS with the article “Sudden and Severe Onset OCD – Practical Advice for Practitioners and Parents”. This article is now published on their website for all to read! The topics writers Michael Jenike, MD and Susan Dailey discuss include: How to Identify a . . . → Read More: IOCDF Brings Awareness to PANDAS What is PANDAS? PANDAS is a pediatric autoimmune disorder characterized by the dramatic onset of neuropsychiatric symptoms such as obsessions, compulsions, motor or vocal tics [Swedo1997]. PANDAS is thought to be similar to Sydenham Chorea where there is dramatic symptom exacerbation following a strep infection [Kirvan2006]. Signs and Symptoms: Children with PANDAS must be . . . → Read More: PANDAS Fact Sheet Summary of Vital PANDAS Studies Below is a list of excellent summaries and simply articulated medical analysis of how PANDAS came to be and the treatment of PANDAS. These postings and others can also be found on the on-line forum. Best summary papers on PANDAS Swedo’s 1998 landmark paper. Feitosa de Olvieira did a . . . → Read More: Informed Parent September 2010 Dear Readers, The information here has been gathered largely by a group of 20 parents whose children had the sudden onset of PANDAS in 2007-2008. Four families near Palo Alto, California – Stanford University – all developed PANDAS near the same time in 2007. We found each other through one caring local . . . → Read More: Who We Are |
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