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PANS child, Greg Davidson, was a source of inspiration along side his doctor, Dr. Jan Kirwinsky in Dr. Jan Kirwinsky & Greg Davidson: PANS Disease 2/20/12 on wkyc.com. In the interview an overall explanation of PANDAS and PANS is given including how it can be confused with other disorders and how strep and other bacteria can . . . → Read More: A PANS Child Helps with Awareness . After a long wait, THE White Paper is out! To be exact, it is titled “From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)”. Dr. Swedo herself sent the paper to PANDAS Network.org’s founder, Diana Pohlman, and gave us permission to pass it on to . . . → Read More: Dr. Swedo’s White Paper on PANDAS/PANS is Released! . Parentsmagazine just issued the great article focusing on PANDAS, PANDAS: A Scary and Controversial Disorder. This 5 page article includes personal stories such as the Bossman family and Diana Pohlman, founder of PANDAS Network.org. It also discuss the various possible causes that may cause the disorder to surface. . Some interesting information is . . . → Read More: Parents Magazine Article on PANDAS . The Suthar Family bring awareness to their son’s struggle with PANDAS in Pandas Illness / Joshua’s Missing Peace. The interview begins by referring to multiple families in the St. Louis area that have been diagnosed with the disorder and their difficult time finding help. The video then branches off to an one on . . . → Read More: The Suthar Family: PANDAS in the News Dr. Elizabeth Latimer . DC area families along with PANDAS Network.org’s Scientific Advisory Board member, Dr. Elizabeth Latimer, are featured in NBC Washington’s Could Strep Throat Cause OCD? The news segment visits two families diagnosed with PANDAS and features an interview with Dr. Latimer. Dr Latimer, who has treated 100+ PANDAS cases in the . . . → Read More: Dr. Latimer on NBC Washington Dr. Rosario Trifiletti Dr. Trifiletti posted this statement earlier in regards to the students in Le Roy… STATEMENT ON LEROY, NY CLUSTER “I have now had the opportunity to review laboratory data collected in a standardized fashion on eight of the nine girls I examined in Leroy, NY on 1/29/12. Five of eight girls . . . → Read More: Dr. Trifiletti’s Statement in Regards to Le Roy Students SAVE THE DATE!
Bay Area PANDAS Parents Symposium Saturday April 28, 2012 10am-5pm Embassy Suites, Burlingame CA (by the San Francisco Airport )
Details on how to RSVP will be coming soon! . Keep up to date by visiting them at PandasParentSymposium.blogspot.com . . What to Expect: A full day of . . . → Read More: Save the Date! PANDAS Parents Symposium 04/28 Not many people haven’t heard of the multiple students in Le Roy, NY who experienced a sudden onset of Tourette-like movements. To date, there are doctors claiming it could be conversion disorder, groups thinking it may be environmental, some insisting it is vaccines. Then there is the other possibility that is getting more and . . . → Read More: Could the Le Roy Students have PANDAS? Summary of Recent Events & Scientific American Article A benefit concert being held in Solon, Ohio this coming February is featured in the news article Benefit to help fight difficult pediatric disorder PANDAS . And it is being hosted by a 7th grader diagnosed with PANS/PANDAS!
“Songs of Broadway – a P.A.N.S. Benefit Concert” When: Sunday, February 12, 2012 Time: 2:00-3:30pm Where: . . . → Read More: 7th Grader Hosts PANDAS Benefit Concert PANDAS awareness in the news directly helps others as seen by this new article Family shares experience with illness linked to strep. The article interviews the Van Nes family and how the recent LA Times article, Childhood disorder prompts study of infection link to mental illness ,enlightened them on the possible cause of their son’s . . . → Read More: The Van Nes Family: PANDAS in the News |
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