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. Treatment and Relapse Survey Results, NORD, and more! December 2012 newsletter is now available! Click here to access information on survey results, NORD, IVIG study, Autoimmune encephalitis paper by Dr. Finn Somnier, Thank you, Johnny, and Support Group Central. If you’d like to receive future newsletters right to your inbox, sign up on . . . → Read More: Treatment and Relapse Survey Results, NORD, and more!  Comments are closed  Case Study, Newsletter, Recovery, Research, Resources, Support, Treatment, Uncategorized  Newsletter, NORD, Pohlman 
It is wonderful to read stories of how PANDAS children have the strength and perserverance to overcome the obstacles associated with disorder to live a full life and fulfill their dreams! In “The Commecial Appeal” website, Garrett Nass is featured in the story “Disorder doesn’t deter boy’s acting dreams“. Garrett has PANDAS, and after treatment, is now pursuing . . . → Read More: PANDAS doesn’t deter boy’s acting dreams: The Nass Family
11 year old Hayden Young is proof at the strength and determination kids with PANDAS have. In the article, Craig James Congratulates Young Texan Who Overcame Autoimmune Disorder to Pitch Perfect Game, it took the Young Family 18 months of misdiagnoses to finally get to the true root cause of Hayden’s decline that consisted of . . . → Read More: 11 Year Old Overcomes PANDAS to Accomplish Great Things: PANDAS in the News One comment - (Comments are closed) Family, PANDAS News, Recovery Craig James, family, news, recovery, Texas, Young The Immunobiology of Tourette’s Disorder, Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus, and Related Disorders: A Way Forward was written by Tanya K. Murphy, M.D., Roger Kurlan, M.D., and James Leckman, M.D. and originally published in the JOURNAL OF CHILD AND ADOLESCENT PSYCHOPHARMACOLOGY, Volume 20, Number 4, 2010, Mary Ann Liebert, Inc., Pp. 317–331, DOI: . . . → Read More: The Immunobiology of PANDAS & Tourettes: A Way Forward 2011 One comment - (Comments are closed) Medical, PANDAS News, Recovery, Research, Treatment academic papers, Leckman What Parents Are Reporting: Summary of notes from the December 2010 Newsletter: Multi-Generational Family Reports There are six reports now from families that the PANDAS syndrome has been experienced for at least two to three generations. This is not the norm but it is an interesting clue perhaps for all of us that there . . . → Read More: Summary: What Parents Are Reporting A video posted by the parents of a boy who was diagnosed in 2001 and has since recovered. They update their blog as news comes in, check it out! This is the story of Jamie. When Jamie was 9 he began to rapidly exhibit symptoms, which looked a lot like OCD and Tourette’s syndrome, a . . . → Read More: Video: Jamie’s Story; Our Child’s Recovery from PANDAS “Saving Sammy” author Beth Maloney and her son talk with NBC’s Today Show hosts about their family’s experience with PANDAS. In shorthand, they talk about how he “Caught OCD.” The show originally aired September 24, 2009. Click to watch: Author of “Saving Sammy” - Watch more Videos at Vodpod. Summary of Vital PANDAS Studies Below is a list of excellent summaries and simply articulated medical analysis of how PANDAS came to be and the treatment of PANDAS. These postings and others can also be found on the on-line forum. Best summary papers on PANDAS Swedo’s 1998 landmark paper. Feitosa de Olvieira did a . . . → Read More: Informed Parent Frequently Asked Questions: Will my child outgrow this? How long does an exacerbation last? What is the Long-Term Outcome of this Illness? Will IVIG or Plasmaphoresus (plasma exchange, PEX) or Antibiotics help my child? What about Prophylactic Antibiotics – How long should my child stay on them? Will my child outgrow this? There is . . . → Read More: Prognosis The information below is based on anecdotal evidence from approximately 70 PANDAS current (2008/2009) patient histories. Many of the children have immune systems that seem to have been chronically irritated since early childhood. Parents often indicate with their PANDAS child: chronic allergies, chronic hoarse coughs that sound “asthma-like” and inflamed sinuses. About 1/4 of the . . . → Read More: Diagnostic Tests |
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We are not physicians and do not give medical advice. We share with you anecdotal evidence only for a more accurate clinical diagnosis of PANDAS and tentative medical treatments that have worked for our young children. |
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