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. After a long wait, THE White Paper is out! To be exact, it is titled “From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)”. Dr. Swedo herself sent the paper to PANDAS Network.org’s founder, Diana Pohlman, and gave us permission to pass it on to . . . → Read More: Dr. Swedo’s White Paper on PANDAS/PANS is Released! The research study Neurocognitive functioning in youth with pediatric autoimmune neuropsychiatric disorders associated with streptococcus shows that neurocognitive functioning can be impaired with children who have PANDAS. This study, done by Drs. Murphy, Storch, Lewin and Mutch in 2011, showed that neurocognitive impairments (including visuospatial recall memory) can be significantly impaired in PANDAS youths. . . . → Read More: Research: Neurocognitive functioning and PANDAS It’s crunch time, everyone! We need every parent to step up to the plate and pass the word TODAY about the NIMH IVIG study. PANDAS Network.org received notification that the NIMH needs only 3 more participants then they will be able to do an interim analysis of the progress of the study! We know the . . . → Read More: IVIG Study Needs Participants ASAP! . In the November issue of Journal of Clinical and Diagnostic Research, a new PANDAS case study in India is presented. The article Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS): A Case Report by Mona Srivastava, Ganesh Shankar, M.N.Tripathi, M.D. discusses the case of a 10 year old boy. According to this . . . → Read More: India Case Report
In the Summer 2011 newsletter, the IOCDF brings continued awareness to PANDAS with the article “Sudden and Severe Onset OCD – Practical Advice for Practitioners and Parents”. This article is now published on their website for all to read! The topics writers Michael Jenike, MD and Susan Dailey discuss include: How to Identify a . . . → Read More: IOCDF Brings Awareness to PANDAS PandasNetwork.org Newsletter New Book for Physicians Featuring PANDAS & More exciting News! September 7, 2011
There’s more exciting news in the world of PANDAS and we felt it imperative to distribute another newsletter so soon after the last!
In this newsletter: New Book Published Texas A&M 10-13 . . . → Read More: New Book for Physicians Featuring PANDAS & More Exciting News!
Dr Madeleine Cunningham This just came in from Pepsi Refresh Project PANDAS, the group that secured $50,000 for Dr. Cunningham’s PANDAS research in 2010. This is quoted from their public page… Progress Report ~ Pepsi Global Giving Project PANDAS “Dr. Cunningham and her lab thank everyone for the opportunity to advance the work . . . → Read More: Progress Report ~ Pepsi Global Giving Project PANDAS The NIH IVIG study is still recruiting, but the contact info has changed. Those interested in participating or would like to know if their child fits the criteria for the study should now contact Rachel Kuschner at rachel.kuschner@yale.edu or call at 203-737-5588. Printable Flier . Share . . . → Read More: New Contact Info for NIH IVIG Study As much as 25% of mothers of PANDAS children may suffer from an autoimmune disease themself.
Does maternal autoimmune disease increase the likelihood of OCD, tics, and PANDAS occurring in children? According to Dr. Tanya Murphy, it does. In the May 2011 edition of Clinical Psychiatry News, it states that . . . → Read More: Maternal Autoimmune Disease and PANDAS
“If autoantibodies are proven to affect behaviors, it will change the way we think about and treat mental disorders forever.”
On 5/29/2011, Dr. Madeleine Cunningham presented “PANDAS and Autoimmunity” at the Autism One/Generation Rescue Conference. As of today (5/31), the archived video presentation . . . → Read More: “PANDAS and Autoimmunity”-Summary of Dr. Cunningham’s AutismOne Presentation |
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