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Media Library

Maternal Autoimmune Disease and PANDAS

As much as 25% of mothers of PANDAS children may suffer from an autoimmune disease themself.

 

Does maternal autoimmune disease increase the likelihood of OCD, tics, and PANDAS occurring in children? According to Dr. Tanya Murphy, it does.

In the May 2011 edition of Clinical Psychiatry News, it states that . . . → Read More: Maternal Autoimmune Disease and PANDAS

“PANDAS and Autoimmunity”-Summary of Dr. Cunningham’s AutismOne Presentation

 

“If autoantibodies are proven to affect behaviors,

it will change the way we think about and treat mental disorders forever.”

On 5/29/2011, Dr. Madeleine Cunningham presented “PANDAS and Autoimmunity” at the Autism One/Generation Rescue Conference.  As of today (5/31), the archived video presentation . . . → Read More: “PANDAS and Autoimmunity”-Summary of Dr. Cunningham’s AutismOne Presentation

Cam Kinase Tests: Check Your Dates

The lab at Oklahoma University, run by Dr. Madeline Cunningham and staff, is asking doctors and families who have CaM-Kinase lab boxes to check the dates on their consent forms.

The forms that are currently in circulation expire March 31, 2011. Which means all labs must be drawn, signed, and sent by that date.  Please . . . → Read More: Cam Kinase Tests: Check Your Dates

Yale-NIH Details on PANDAS IVIG Clinical Treatment Study

Update 1/27/11: Another link with PANDAS IVIG trial information and details, including the medication and dose.

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. . . → Read More: Yale-NIH Details on PANDAS IVIG Clinical Treatment Study

2011 PANDAS IVIG Study Announced by NIH

An IVIG drip as part of the PANDAS treatment protocol.

Update 2/1/11: Latest news and details from Yale, including a contact for the study information.

Update 1/27/11: Another link with PANDAS IVIG trial information and details, including the medication and dose.

A long awaited study on the use of IVIG to . . . → Read More: 2011 PANDAS IVIG Study Announced by NIH

EVENTS: Swedo & Maloney on BlogTalkRadio

Two BlogTalkRadio events are coming up that discuss P.A.N.D.A.S.

Mark your calendars and join the community for Q&A, the latest news and more.

Wednesday, January 12, 2011. 9 PM ET features Beth Maloney, mother of a PANDAS child and author of Saving Sammy.

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Wednesday, February 9. 2011. . . . → Read More: EVENTS: Swedo & Maloney on BlogTalkRadio

The Immunobiology of PANDAS & Tourettes: A Way Forward 2011

The Immunobiology of Tourette’s Disorder, Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus, and Related Disorders: A Way Forward was written by Tanya K. Murphy, M.D., Roger Kurlan, M.D., and James Leckman, M.D. and originally published in the JOURNAL OF CHILD AND ADOLESCENT PSYCHOPHARMACOLOGY, Volume 20, Number 4, 2010, Mary Ann Liebert, Inc., Pp. 317–331, DOI: . . . → Read More: The Immunobiology of PANDAS & Tourettes: A Way Forward 2011

Cunningham Lab, NIMH White Paper, Request for Video

Some quick notes on the medical side of PANDAS:

Word is that a white paper from the July 2010 NIMH Meeting of PANDAS experts is forthcoming. A date has not been set, but it may be timed with the upcoming NIMH-Yale study planed for January 2011. The doctors are likely being careful to lay out . . . → Read More: Cunningham Lab, NIMH White Paper, Request for Video

Video: PANDAS 2010, The Year of Hope

What a moving and compelling compilation of all the work that doctors, patients and their families have done this year to drive awareness and get help for those suffering the effects of PANDAS.

Please watch, it is worth every second:

Video courtesy of Vickie Blavat.

. . . → Read More: Video: PANDAS 2010, The Year of Hope

Scientific Advisory Board Members

PANDAS Network

Scientific Advisory Board

Tamar Chansky, Ph.D. Psychologist Founder and Director, Children’s Center for OCD and Anxiety

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Madeleine W. Cunningham, Ph.D. Microbiology and Immunology George Lynn Cross Research Professor of Autoimmunity and Infection University of Oklahoma College of Medicine

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Miroslav . . . → Read More: Scientific Advisory Board Members