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. After a long wait, THE White Paper is out! To be exact, it is titled “From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)”. Dr. Swedo herself sent the paper to PANDAS Network.org’s founder, Diana Pohlman, and gave us permission to pass it on to . . . → Read More: Dr. Swedo’s White Paper on PANDAS/PANS is Released! SAVE THE DATE!
Bay Area PANDAS Parents Symposium Saturday April 28, 2012 10am-5pm Embassy Suites, Burlingame CA (by the San Francisco Airport )
Details on how to RSVP will be coming soon! . Keep up to date by visiting them at PandasParentSymposium.blogspot.com . . What to Expect: A full day of . . . → Read More: Save the Date! PANDAS Parents Symposium 04/28 Dr. Rosario Trifiletti on "Kids First" Dr. Rosario Trifiletti and parent Maggie Glynn are interviewed by “Kids First‘” Dr. Rosalie Greenberg, M.D. in two new videos about PANDAS. The first video, PANDAS 1, discusses an overview of the disorder and a parent’s perspective. The second video, PANDAS 2, discusses the controversies surrounding the disorder and . . . → Read More: Dr. R.Trifiletti/Kids First Videos “Pediatric Autoimmune Neuropsychiatric Disorders: A New Frontier for Occupational Therapy Intervention” appears in the new edition of OT Practice Magazine! As you may recognize, this article was written by the same authors of the OT handout issued earlier this year, “PANDAS/PITAND Recognizing and treating children with Pediatric AutoimmuneNeuropsychiatric Disorders in OT“, Janice Tona and Trudy . . . → Read More: NEW PANDAS/Occupational Therapy Article The NIH is still actively accepting PANDAS children into their IVIg study! If your child is a new onset case (6 months or less) and fits the criteria, consider contacting the recruiter for more information and to see if your child is eligible. Please visit the NIH Clinical Trials Page for more information. . . . → Read More: Don’t Forget…The NIH IVIG Study is Still Recruiting!
PANDAS Network is proud to have its opening HOME page now available in Spanish! Thank you to Dr. Jose Franco Visoso, Pediatric Neurologist, for providing PANDAS Network with the translation. The new page can be found under the HOME tab at the top of the website or you can view it by visiting . . . → Read More: PANDAS Network.org in Spanish!
In the Summer 2011 newsletter, the IOCDF brings continued awareness to PANDAS with the article “Sudden and Severe Onset OCD – Practical Advice for Practitioners and Parents”. This article is now published on their website for all to read! The topics writers Michael Jenike, MD and Susan Dailey discuss include: How to Identify a . . . → Read More: IOCDF Brings Awareness to PANDAS PandasNetwork.org Newsletter New Book for Physicians Featuring PANDAS & More exciting News! September 7, 2011
There’s more exciting news in the world of PANDAS and we felt it imperative to distribute another newsletter so soon after the last!
In this newsletter: New Book Published Texas A&M 10-13 . . . → Read More: New Book for Physicians Featuring PANDAS & More Exciting News! When one PANDAS mom searched for a social story relating to PANDAS and IVIG for her child, she found there wasn’t anything that really explained what was going to happen. So, that mom, Teresa Champion, decided to change that and write one herself! Teresa has been kind enough share her story with PANDAS Network and . . . → Read More: IVIg:A Social Story A recently published Case Study in Psychiatric Annals Online discusses a 7 year old boy diagnosed with ADHD who then develops a list of sudden onset behavior changes. Amongst the new symptoms that surfaced were: Aggression Irritably Impulsive behavior Social withdrawal Changes in eating Lack of eye contact Rapid, non-rhythmic movements of hands Choreiform head . . . → Read More: Case Study: From ADHD to Sudden Onset PANDAS |
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