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Media Library

Dr. R.Trifiletti/Kids First Videos

Dr. Rosario Trifiletti on "Kids First"

Dr. Rosario Trifiletti and parent Maggie Glynn are interviewed by “Kids First‘” Dr. Rosalie Greenberg, M.D. in two new videos about PANDAS.

The first video, PANDAS 1, discusses an overview of the disorder and a parent’s perspective.

The second video, PANDAS 2, discusses the controversies surrounding the disorder and . . . → Read More: Dr. R.Trifiletti/Kids First Videos

NEW PANDAS/Occupational Therapy Article

“Pediatric Autoimmune Neuropsychiatric Disorders: A New Frontier for Occupational Therapy Intervention” appears in the new edition of OT Practice Magazine!

As you may recognize, this article was written by the same authors of the OT handout issued earlier this year, “PANDAS/PITAND Recognizing and treating children with Pediatric AutoimmuneNeuropsychiatric Disorders in OT“, Janice Tona and Trudy . . . → Read More: NEW PANDAS/Occupational Therapy Article

Don’t Forget…The NIH IVIG Study is Still Recruiting!

The NIH is still actively accepting PANDAS children into their IVIg study!

If your child is a new onset case (6 months or less) and fits the criteria, consider contacting the recruiter for more information and to see if your child is eligible.

Please visit the NIH Clinical Trials Page for more information.

. . . → Read More: Don’t Forget…The NIH IVIG Study is Still Recruiting!

PANDAS Network.org in Spanish!

 

PANDAS Network is proud to have its opening HOME page now available in Spanish!

Thank you to Dr. Jose Franco Visoso, Pediatric Neurologist, for providing PANDAS Network with the translation.

The new page can be found under the HOME tab at the top of the website or you can view it by visiting . . . → Read More: PANDAS Network.org in Spanish!

IOCDF Brings Awareness to PANDAS

 

In the Summer 2011 newsletter, the IOCDF brings continued awareness to PANDAS with the article “Sudden and Severe Onset OCD – Practical Advice for Practitioners and Parents”. This article is now published on their website for all to read! The topics writers Michael Jenike, MD and Susan Dailey discuss include:

How to Identify a . . . → Read More: IOCDF Brings Awareness to PANDAS

New Book for Physicians Featuring PANDAS & More Exciting News!

PandasNetwork.org Newsletter New Book for Physicians Featuring PANDAS & More exciting News!

September 7, 2011

There’s more exciting news in the world of PANDAS and we felt it imperative to distribute another newsletter so soon after the last!

 

In this newsletter:

New Book Published Texas A&M 10-13 . . . → Read More: New Book for Physicians Featuring PANDAS & More Exciting News!

IVIg:A Social Story

When one PANDAS mom searched for a social story relating to PANDAS and IVIG for her child, she found there wasn’t anything that really explained what was going to happen. So, that mom, Teresa Champion, decided to change that and write one herself! Teresa has been kind enough share her story with PANDAS Network and . . . → Read More: IVIg:A Social Story

Case Study: From ADHD to Sudden Onset PANDAS

A recently published Case Study in Psychiatric Annals Online discusses a 7 year old boy diagnosed with ADHD who then develops a list of sudden onset behavior changes. Amongst the new symptoms that surfaced were:

Aggression Irritably Impulsive behavior Social withdrawal Changes in eating Lack of eye contact Rapid, non-rhythmic movements of hands Choreiform head . . . → Read More: Case Study: From ADHD to Sudden Onset PANDAS

“PANDAS and Autoimmunity”-Summary of Dr. Cunningham’s AutismOne Presentation

 

“If autoantibodies are proven to affect behaviors,

it will change the way we think about and treat mental disorders forever.”

On 5/29/2011, Dr. Madeleine Cunningham presented “PANDAS and Autoimmunity” at the Autism One/Generation Rescue Conference.  As of today (5/31), the archived video presentation . . . → Read More: “PANDAS and Autoimmunity”-Summary of Dr. Cunningham’s AutismOne Presentation

Occupational Therapy and Treating PANDAS

The NYSOTA (New York State Occupational Therapy Association) recently added a section for Occupational Therapists to learn more about PANDAS and PITAND!

This is wonderful news as some PANDAS children may benefit from Occupational Therapy and current clients of OT’s may unknowingly fall under the PANDAS umbrella. Amongst the information listed, there is a section . . . → Read More: Occupational Therapy and Treating PANDAS