New Jersey Magic 98.3’s Maggie Glynn interviews Dr. Susan Swedo in this 30 minute, information packed radio spot. This is definitely an item worth listening to and sharing!
You can listen to it below or visit the show’s page directly at http://www.magic983.com/maggie-glynn.aspx.
PANDAS/PANS affects as many as 1 in 200 children. Maggie interviews Dr. Susan Swedo, Senior Investigator & Chief Pediatrics and Developmental Neuroscience Branch at the National Institute of Mental Health and the national expert on PANDAS/PANS.
Posted 10/12/2014 7:30:00 AM
Below is not a verbatim transcript. To listen to show in its entirety, visit Maggie Glynn – Magic 98.3 Show 2 at www.magic983.com/maggie-glynn.aspx.
The October 2014 interview touched on many of the usual, but needed, topics such as an overview of PANDAS and PANS, diagnosing, treating, history, research, etc. It also discussed some items that are not often mentioned. Below are some the of the highlighted topics we wish to share.
- A clue of PANDAS is urinary problems. Approximately 50% of children present with some sort of urinary symptom.
- At this point, we now know more about PANDAS than we do about SC (Sydenham Chorea) and the neurological manifestations that may occur with RF (Rheumatic Fever).
- PANDAS is not a response to the infection. It is a post-infection occurrence. It can happen at time of infection or several weeks/months after the infection was present.
- PANDAS doesn’t always happen with the child’s first strep infection. PANDAS can occur with any strep infection. It depends what the strep bacteria has on its cell wall and the child’s immune response.
- PANDAS is a combination of genetic vulnerability and an exuberant response to strep.
- More children have PANDAS than we realize. PANDAS is not extremely rare.
- 8 out of 12 PANDAS children who were diagnosed as having strep and were given timely, appropriate treatment with antibiotics, had a resolution of their symptoms.
- Providers with specific questions about what steps to take for the patients can email the NIH at OCDresearch@mail.nih.gov.
- Future research at the NIMH will focus on acute onset with eating disorders.