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PANDAS in the News: The Tolley Family

PANDAS Network Sun

 

Thank you to the Tolley Family for participating in the article, Five Year Old Campbell County Boy Faces Fight With Rare Disease. Please read the article, including information on their upcoming fundraising event to go towards Grayson’s treatment.

“We just knew very early on that something was just not right” said Denise Tolley.

. . . → Read More: PANDAS in the News: The Tolley Family

NE Conference Highlights

PANDAS Network Table

 UPDATED 12/9/2013 to include additional notes.

November 9 and 10 proved to be a well informed and uniting day for parents, researchers, and physicians. With over 400 people in attendance, this was the largest conference solely devoted to PANDAS and PANS. Thank you to the NE PANS/PANDAS Parents Association for their great work and . . . → Read More: NE Conference Highlights

Swedo WINS AAP Debate!

PANDAS Network Sun

Congratulations to Dr. Susan Swedo on winning the PANDAS debate against Dr. Donald Gilbert at the AAP conference!

According to AAP News, “In (a) vote following debate, about 85 percent of attendees agree with Swedo’s position, similar to pre-debate tally.”

In an AAP News TODAY pre-debate interview, Dr. Swedo was quoted saying,

“We’ve got more . . . → Read More: Swedo WINS AAP Debate!

Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

 

In the newly published paper Dopamine Receptor Autoantibodies Correlate with Symptoms in Sydenham’s Chorea , Drs. Ben-Pazi, Stoner, and Cunningham linked, for the first time, autoimmunity with neuropsychiatric symptoms.

This paper is based on findings in children with SC (Sydenham’s Chorea), but lays the foundation for PANDAS and PANS as well.

Over the past . . . → Read More: Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

Dr. Cunningham to Present at “Lectureship in Pediatric Infectious Diseases” 11/6/13

Dr Madeleine Cunningham

Dr Madeleine Cunningham

 

The following lecture will be held by the Harris D. Riley, Jr. Pediatric Society and is open to the public. This teaching seminar will feature Dr. Madeleine Cunningham. It is not an introductory lecture and will include “technical language”.

This would be a great opportunity for Oklahoma pediatricians and providers. . . . → Read More: Dr. Cunningham to Present at “Lectureship in Pediatric Infectious Diseases” 11/6/13

Swedo/Gilbert Debate at Upcoming AAP Conference: Attend & Inform

AAP Confernece

In vote following debate, about 85 percent of attendees agree with Swedo’s position, similar to pre-debate tally #AAP13

— AAP News (@AAPNews) October 27, 2013

 

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PEDIATRICIANS:

AAP Conference October 26-29

Are you attending the upcoming AAP NCE (National Convention and Exhibition) meeting in Orlando , FL? Make sure to include the Dr. . . . → Read More: Swedo/Gilbert Debate at Upcoming AAP Conference: Attend & Inform

Strep Creates Inflammation and So Can Diet

PANDAS Network Sun

. Many parents of PANDAS and PANS children report sensitivity to diet (sugar, wheat, dairy) during exacerbations.  Particularly, children that have been diagnosed with Celiac Disease seem to have a harder time recovering from the illness.  Although dietary vigilance has long been encouraged in DAN/MAPS Pediatric practices, it isn’t well understood by the traditional medical community. . . . → Read More: Strep Creates Inflammation and So Can Diet

Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research

Dr Agalliu

PANDAS Network.org is excited to give donors an easy way to contribute to Dr. Dritan Agalliu’s PANDAS research!

Dr. Dritan Agalliu studies the molecular, cellular and genetic analysis of mammalian blood-brain barrier development and the role of the barrier in disease pathogenesis. Dr. Agalliu research plans to explain the mechanisms that break down the blood-brain . . . → Read More: Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research

Online Research Study Now Active: “Retrospective” Survey

PANDAS Network Sun

This survey is closed. Thank you for participating!

. PANDAS-PANS-PITAND Retrospective Research Study Invitation .

You are invited to participate in an online survey research study from the University at Buffalo in collaboration with Dr. Tanya Murphy from the University of South Florida to learn more about the symptoms, diagnosis, interventions, and clinical course of . . . → Read More: Online Research Study Now Active: “Retrospective” Survey

Neuroinflammation and Psychiatric Illness

The article, Neuroinflammation and psychiatric illness by Dr. Souhel  Najjar et al. discusses “the pathogenic role of neuroinflammation in psychiatric  illness”.

This isn’t necessarily a “beginner’s” article, but some fascinating topics are mentioned throughout.

Within the article, is a section devoted to PANDAS, titled “PANDAS and pure obsessive-compulsive disorder associated with anti-basal ganglia/thalamic  autoantibodies”. However, one can . . . → Read More: Neuroinflammation and Psychiatric Illness