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New PANS Article in Naturopathic Doctor News & Review

NDNR

The April 2014 issue of NDNR highlights the very well written, multi-page article by Dr. Steven Rondeau, ND, BCIA-EEG, “Elucidating PANDAS Follow-Up Discussion of an immune-Mediated Mental illness”.

Dr. Rondeau touches on a variety of aspects of the disorders, including history and the Catch 22 of diagnosing and treatment. As he states, “Part of the . . . → Read More: New PANS Article in Naturopathic Doctor News & Review

Who Inspires a PANDAS Researcher?

Dr. Cunningham

So who inspired one of the most influential people in the PANDAS research community to become a researcher? Read Bio Matters: A father’s love of science sparked research career for OU professor and find out why Dr. Madeleine Cunningham began her decades long career studying strep, Rheumatic Fever, and now PANDAS.

When Madeleine Cunningham . . . → Read More: Who Inspires a PANDAS Researcher?

Bipolar News Discusses Dr. Kiki Chang and PANS

PandasNetwork

Bipolar Network News May article, “PANS: Sudden OCD or Restrictive Eating Disorder Onset Following an Infection” focuses on Dr. Kiki Chang and his 2014 meeting of the International Society for Bipolar Disorder presentation.

This article includes the “sometimes forgotten” primary PANS symptom of severe restrictive eating. It also gives an insight into the patient population . . . → Read More: Bipolar News Discusses Dr. Kiki Chang and PANS

Symposium Presentation Videos Now Online

Watch Learn Share

 

PANDAS Network is happy to share presentations from the West Coast PANDAS/PANS Symposium!

These videos are available for free and can be viewed below or found at youtube.com/pandasnetworkvideos. Links to these informative presentations will also be permanently housed on the PANDAS Network website.

Thank you to the providers, researchers, and parents that appeared . . . → Read More: Symposium Presentation Videos Now Online

A Link Between Perianal Strep and PANDAS

PANDAS Network Sun

An important fact to remember when dealing with possible PANDAS is that strep can occur in more places than the throat! PANDAS is not solely related to strep THROAT. It is triggered by Group A β-hemolytic streptococcal [GABHS]) infections.

As previously discussed in 2010′s The Immunobiology of Tourette’s Disorder, Pediatric Autoimmune Neuropsychiatric Disorders Associated . . . → Read More: A Link Between Perianal Strep and PANDAS

PANDAS in the News: The Tolley Family

PANDAS Network Sun

 

Thank you to the Tolley Family for participating in the article, Five Year Old Campbell County Boy Faces Fight With Rare Disease. Please read the article, including information on their upcoming fundraising event to go towards Grayson’s treatment.

“We just knew very early on that something was just not right” said Denise Tolley.

. . . → Read More: PANDAS in the News: The Tolley Family

NE Conference Highlights

PANDAS Network Table

UPDATED 12/9/2013 to include additional notes.

November 9 and 10 proved to be a well informed and uniting day for parents, researchers, and physicians. With over 400 people in attendance, this was the largest conference solely devoted to PANDAS and PANS. Thank you to the NE PANS/PANDAS Parents Association for their great work . . . → Read More: NE Conference Highlights

Swedo WINS AAP Debate!

PANDAS Network Sun

Congratulations to Dr. Susan Swedo on winning the PANDAS debate against Dr. Donald Gilbert at the AAP conference!

According to AAP News, “In (a) vote following debate, about 85 percent of attendees agree with Swedo’s position, similar to pre-debate tally.”

In an AAP News TODAY pre-debate interview, Dr. Swedo was quoted saying,

“We’ve got more . . . → Read More: Swedo WINS AAP Debate!

Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

 

In the newly published paper Dopamine Receptor Autoantibodies Correlate with Symptoms in Sydenham’s Chorea , Drs. Ben-Pazi, Stoner, and Cunningham linked, for the first time, autoimmunity with neuropsychiatric symptoms.

This paper is based on findings in children with SC (Sydenham’s Chorea), but lays the foundation for PANDAS and PANS as well.

Over the . . . → Read More: Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

Dr. Cunningham to Present at “Lectureship in Pediatric Infectious Diseases” 11/6/13

Dr Madeleine Cunningham

Dr Madeleine Cunningham

 

The following lecture will be held by the Harris D. Riley, Jr. Pediatric Society and is open to the public. This teaching seminar will feature Dr. Madeleine Cunningham. It is not an introductory lecture and will include “technical language”.

This would be a great opportunity for Oklahoma pediatricians and providers. . . . → Read More: Dr. Cunningham to Present at “Lectureship in Pediatric Infectious Diseases” 11/6/13