UPDATED 12/9/2013 to include additional notes.
November 9 and 10 proved to be a well informed and uniting day for parents, researchers, and physicians. With over 400 people in attendance, this was the largest conference solely devoted to PANDAS and PANS. Thank you to the NE PANS/PANDAS Parents Association for their great work and . . . → Read More: NE Conference Highlights
Congratulations to Dr. Susan Swedo on winning the PANDAS debate against Dr. Donald Gilbert at the AAP conference!
According to AAP News, “In (a) vote following debate, about 85 percent of attendees agree with Swedo’s position, similar to pre-debate tally.”
In an AAP News TODAY pre-debate interview, Dr. Swedo was quoted saying,
“We’ve got more . . . → Read More: Swedo WINS AAP Debate!
In the newly published paper Dopamine Receptor Autoantibodies Correlate with Symptoms in Sydenham’s Chorea , Drs. Ben-Pazi, Stoner, and Cunningham linked, for the first time, autoimmunity with neuropsychiatric symptoms.
This paper is based on findings in children with SC (Sydenham’s Chorea), but lays the foundation for PANDAS and PANS as well.
Over the past . . . → Read More: Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms
Dr Madeleine Cunningham
The following lecture will be held by the Harris D. Riley, Jr. Pediatric Society and is open to the public. This teaching seminar will feature Dr. Madeleine Cunningham. It is not an introductory lecture and will include “technical language”.
This would be a great opportunity for Oklahoma pediatricians and providers. . . . → Read More: Dr. Cunningham to Present at “Lectureship in Pediatric Infectious Diseases” 11/6/13
In vote following debate, about 85 percent of attendees agree with Swedo’s position, similar to pre-debate tally #AAP13
— AAP News (@AAPNews) October 27, 2013
AAP Conference October 26-29
Are you attending the upcoming AAP NCE (National Convention and Exhibition) meeting in Orlando , FL? Make sure to include the Dr. . . . → Read More: Swedo/Gilbert Debate at Upcoming AAP Conference: Attend & Inform
. Many parents of PANDAS and PANS children report sensitivity to diet (sugar, wheat, dairy) during exacerbations. Particularly, children that have been diagnosed with Celiac Disease seem to have a harder time recovering from the illness. Although dietary vigilance has long been encouraged in DAN/MAPS Pediatric practices, it isn’t well understood by the traditional medical community. . . . → Read More: Strep Creates Inflammation and So Can Diet
PANDAS Network.org is excited to give donors an easy way to contribute to Dr. Dritan Agalliu’s PANDAS research!
Dr. Dritan Agalliu studies the molecular, cellular and genetic analysis of mammalian blood-brain barrier development and the role of the barrier in disease pathogenesis. Dr. Agalliu research plans to explain the mechanisms that break down the blood-brain . . . → Read More: Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research
*The survey takes approximately 30-40 minutes to complete.
. PANDAS-PANS-PITAND Retrospective Research Study Invitation .
You are invited to participate in an online survey research study from the University at Buffalo in collaboration with Dr. Tanya Murphy from the University of South Florida to learn more about the symptoms, diagnosis, interventions, and clinical course of children . . . → Read More: Online Research Study Now Active: “Retrospective” Survey
The article, Neuroinflammation and psychiatric illness by Dr. Souhel Najjar et al. discusses “the pathogenic role of neuroinflammation in psychiatric illness”.
This isn’t necessarily a “beginner’s” article, but some fascinating topics are mentioned throughout.
Within the article, is a section devoted to PANDAS, titled “PANDAS and pure obsessive-compulsive disorder associated with anti-basal ganglia/thalamic autoantibodies”. However, one can . . . → Read More: Neuroinflammation and Psychiatric Illness
Child Mind Institute published the new article, “PANDAS and PANS: About Acute-Onset OCD, New category, new thinking, old controversy”.
The following is an excerpt from the article:
Parents use words like “abrupt,” “overnight,” and “out of the blue.” The symptoms, they say, went “from zero to 60.” The child, who had been happy and untroubled, . . . → Read More: Child Mind Institute PANDAS/PANS Article