PANDAS Network

Neuroinflammation and Psychiatric Illness

Vickie — Sun, 19 May 2013 00:10:51 +0000

The article, Neuroinflammation and psychiatric illness by Dr. Souhel Najjar et al. discusses “the pathogenic role of neuroinflammation in psychiatric illness”.

This isn’t necessarily a “beginner’s” article, but some fascinating topics are mentioned throughout.

Within the article, is a section devoted to PANDAS, titled “PANDAS and pure obsessive-compulsive disorder associated with anti-basal ganglia/thalamic autoantibodies”. However, one can . . . → Read More: Neuroinflammation and Psychiatric Illness

NIMH Twitter Chat Archive Available

Vickie — Mon, 13 May 2013 13:55:51 +0000

On May 8, 2013 the NIMH hosted a twitter chat on PANDAS and PANS for Children’s Mental Health Awareness Day. PANDAS Network.org was proud to participate. The archive of those posts are now available online and can be found at http://storify.com/NIMHgov/nimh-twitter-chat-on-pandas-pans.

The Jones Family: PANDAS in the News

Vickie — Tue, 07 May 2013 14:12:53 +0000

The Jones family is featured in the article Angels Among Us – Medical Mystery. It discusses Rheanna, the typical, well-rounded girl that excelled in sports who then spiraled into depression, anxiety, tics, and more due to PANDAS….

Her dad, Roger Jones, remembered, “She became combative, very angry, screaming, yelling. My parenting skills were . . . → Read More: The Jones Family: PANDAS in the News

Ohio PANDAS Parent Support Group Meeting

Kari — Sat, 04 May 2013 22:04:54 +0000

The next Ohio PANDAS Parent Support Group Meeting will be: Thursday, May 16th, at 7pm at Colin’s Coffee, 3714 Riverside Dr., Columbus, OH 43221

Please contact Sharla Starker if you have any questions, concerns or comments at: uamamabear@gmail.com

NIMH to Host PANDAS Tweet Chat 5/8/2013

Vickie — Sat, 04 May 2013 00:18:43 +0000

The NIMH will be hosting a tweet chat on May 8 as part of National Children’s Mental Health Awareness Day from 11 a.m. to noon ET.

The NIMH’s Dr. Susan Swedo and Dr. Paul Grant are scheduled to participate.

If you are interested in taking part, you will need a twitter account. From 11-12 ET on 5/8/2013, simply search . . . → Read More: NIMH to Host PANDAS Tweet Chat 5/8/2013

Antibiotic Trial for PANDAS & PANS is Recruiting!

Vickie — Fri, 03 May 2013 01:05:36 +0000

The Rothman Center for Neuropsychiatry is looking for volunteers to participate in a research study on antibiotic treatment for obsessive compulsive disorder due to PANS/PANDAS phenotype. To learn more about this AZITHROMYCIN study, please refer to their recruitment flyer and the Clinical Trial page.

A printable pdf version of the recruitment flyer can be found at http://pandasnetwork.org/wp-content/uploads/2013/05/Antibiotic_Brochure.pdf.

. . . → Read More: Antibiotic Trial for PANDAS & PANS is Recruiting!

PANDAS/PANS Awareness Store Now Online

Vickie — Wed, 01 May 2013 17:36:13 +0000

PANDAS Network.org has opened its first online store at Zazzle! We have gotten a large amount of requests asking for PANDAS related merchandise, so we have made it available products available for purchase.

15% of each item purchased will go to PANDAS Network.org and our advocacy efforts. Purchases will be processed by and shipped directly . . . → Read More: PANDAS/PANS Awareness Store Now Online

Univ. of Detroit Mercy Looking for Study Participants

Vickie — Thu, 25 Apr 2013 21:48:21 +0000

The University of Detroit Mercy is conducting a study on the experience of PANDAS for families in the United States. We have been asked to pass along information pertaining to the study to PANDAS families. If you are interested in participating in this phone interview study, please read the information that was provided by study . . . → Read More: Univ. of Detroit Mercy Looking for Study Participants

Child Mind Institute PANDAS/PANS Article

Vickie — Wed, 24 Apr 2013 00:06:53 +0000

Child Mind Institute published the new article, “PANDAS and PANS: About Acute-Onset OCD, New category, new thinking, old controversy”.

The following is an excerpt from the article:

Parents use words like “abrupt,” “overnight,” and “out of the blue.” The symptoms, they say, went “from zero to 60.” The child, who had been happy and untroubled, . . . → Read More: Child Mind Institute PANDAS/PANS Article

Moleculera Labs Opens!

Vickie — Mon, 22 Apr 2013 12:17:13 +0000

The long anticipated Moleculera Labs officially open today, April 22, 2013!

This lab will offer a a series of five (5) assays called the “Cunningham Panel”. According to their website, “The collective results of the panel of 5 tests will provide an assessment as to the anti-neuronal and autoimmune state of the patient at the time . . . → Read More: Moleculera Labs Opens!