PANDAS Network http://pandasnetwork.org Information about pediatric autoimmune neuropsychological disorder associated with strep Tue, 15 May 2012 19:34:16 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 “Autoimmune Diseases of the Nervous System” Conference-September 2012 http://pandasnetwork.org/2012/05/autoimmune-diseases-conference/ http://pandasnetwork.org/2012/05/autoimmune-diseases-conference/#comments Tue, 15 May 2012 19:32:32 +0000 Vickie Blavat http://pandasnetwork.org/?p=4476 This conference will take place on September 24-25, 2012 at University of California, Irvine.

Includes research presentations, a public afternoon poster session and evening panel discussion Focus on PANDAS research and treatment Confirmed speakers include Dr. Madeleine Cunningham, Dr. Tanya Murphy, Dr. Rosario Trifiletti, Dr. Mady . . . → Read More: “Autoimmune Diseases of the Nervous System” Conference-September 2012]]> http://pandasnetwork.org/2012/05/autoimmune-diseases-conference/feed/ 0 Connecticut Passes Bill for PANDAS Research http://pandasnetwork.org/2012/05/connecticut-passes-bill-for-pandas-research/ http://pandasnetwork.org/2012/05/connecticut-passes-bill-for-pandas-research/#comments Thu, 10 May 2012 13:32:01 +0000 Vickie Blavat http://pandasnetwork.org/?p=4460 . . . → Read More: Connecticut Passes Bill for PANDAS Research]]> http://pandasnetwork.org/2012/05/connecticut-passes-bill-for-pandas-research/feed/ 1 Tel Aviv/Rat Model Study Published! http://pandasnetwork.org/2012/04/tel-aviv-study-published/ http://pandasnetwork.org/2012/04/tel-aviv-study-published/#comments Mon, 30 Apr 2012 16:16:12 +0000 Vickie Blavat http://pandasnetwork.org/?p=4430 The long awaited TEL AVIV STUDY has been published!!!  The study is titled “Behavioral, Pharmacological, and Immunological Abnormalities after Streptococcal Exposure: A Novel Rat Model of Sydenham Chorea and Related Neuropsychiatric Disorders” has recently been released in the newest issue of Neuropsychopharmacology!

Only the abstract of this study is available for free to the public.  This . . . → Read More: Tel Aviv/Rat Model Study Published!]]> http://pandasnetwork.org/2012/04/tel-aviv-study-published/feed/ 0 NC 5K Fun&Run to Benefit PANDAS Awareness 05/05/2012 http://pandasnetwork.org/2012/04/fun-and-run-to-benefit-pandas-awareness/ http://pandasnetwork.org/2012/04/fun-and-run-to-benefit-pandas-awareness/#comments Thu, 26 Apr 2012 17:57:19 +0000 Vickie Blavat http://pandasnetwork.org/?p=4391 Our AMAZING parents have just informed us of an upcoming 5K and 1 mile walk/run in North Carolina that will help wonderful organizations, including PANDAS Network.org, will take place on May 5, 2012!

To register for this event and for more information, please visit the event’s website .

Cary/Raleigh/Durham Locals please come out to support . . . → Read More: NC 5K Fun&Run to Benefit PANDAS Awareness 05/05/2012]]> http://pandasnetwork.org/2012/04/fun-and-run-to-benefit-pandas-awareness/feed/ 3 PANDAS Parents Symposium Press Release http://pandasnetwork.org/2012/04/pandas-parents-symposium-press-release/ http://pandasnetwork.org/2012/04/pandas-parents-symposium-press-release/#comments Wed, 18 Apr 2012 12:52:53 +0000 Vickie Blavat http://pandasnetwork.org/?p=4323 A press release has been issued for the upcoming PANDAS Parents Symposium on April 28th in California!

Parents of PANDAS Children Seek Support at April 28 Symposium 

Because of the challenges parents face in getting support and care for their children, the symposium will focus on diagnosis and treatment options, current PANDAS research and how to . . . → Read More: PANDAS Parents Symposium Press Release]]> http://pandasnetwork.org/2012/04/pandas-parents-symposium-press-release/feed/ 2 PANDAS Network/Pampered Chef® Fundraiser! http://pandasnetwork.org/2012/04/pandas-networkpampered-chef-fundraiser/ http://pandasnetwork.org/2012/04/pandas-networkpampered-chef-fundraiser/#comments Mon, 16 Apr 2012 16:48:05 +0000 Vickie Blavat http://pandasnetwork.org/?p=4215 From now until April 29th, if you make a purchase through our special link, http://tinyurl.com/PandasNetwork-PamperedChef,  a portion of your sale* will be donated to PANDAS Network.org!!!

. Pampered Chef® is the gateway to high quailty kitchen tools. From totes that are only . . . → Read More: PANDAS Network/Pampered Chef® Fundraiser!]]> http://pandasnetwork.org/2012/04/pandas-networkpampered-chef-fundraiser/feed/ 0 Upcoming Seminar-Sensory Integration Disorder, Autism, and PANS http://pandasnetwork.org/2012/04/upcoming-seminar-sensory-integration-disorder-autism-and-pans/ http://pandasnetwork.org/2012/04/upcoming-seminar-sensory-integration-disorder-autism-and-pans/#comments Fri, 06 Apr 2012 01:10:48 +0000 Vickie Blavat http://pandasnetwork.org/?p=4164

. .

Trudy Posner, MS, OTR/L will be holding a PANS, PANDAS, PITAND seminar on May 7 in Pennsylvania and May 14 in New York  titled Sensory Integration Disorder, Autism, and PANS (PANDAS).  For more information on this event, please visit Trudy’s webpage.

 

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. . . → Read More: Upcoming Seminar-Sensory Integration Disorder, Autism, and PANS]]> http://pandasnetwork.org/2012/04/upcoming-seminar-sensory-integration-disorder-autism-and-pans/feed/ 0 April 1 Newsletter: NIMH, Symposium, PAS Meeting Info http://pandasnetwork.org/2012/04/april-1-newsletter-nimh-symposium-pas-meeting-info/ http://pandasnetwork.org/2012/04/april-1-newsletter-nimh-symposium-pas-meeting-info/#comments Tue, 03 Apr 2012 18:34:24 +0000 Vickie Blavat http://pandasnetwork.org/?p=4136 The   April 1, 2012 newsletter is now available! In this newsletter, topics include:

PANDAS Parents Symposium NIMH Issues Press Release and Blog Post on PANDAS Drs. Swedo, Leckman, and more to Speak at Pediatric Academic Societies Meeting Treating Physician List Now Available

You can read the April 1st newsletter by clicking here.

 

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. . . → Read More: April 1 Newsletter: NIMH, Symposium, PAS Meeting Info]]> http://pandasnetwork.org/2012/04/april-1-newsletter-nimh-symposium-pas-meeting-info/feed/ 0 The Pendergrafts & Poarch Families: PANDAS in the News http://pandasnetwork.org/2012/04/the-poarch-family-pandas-in-the-news/ http://pandasnetwork.org/2012/04/the-poarch-family-pandas-in-the-news/#comments Sun, 01 Apr 2012 12:33:51 +0000 Vickie Blavat http://pandasnetwork.org/?p=4119 The news article, Families fight with PANDAS, is the story of the Pendergrafts and Poarch families and their journey with PANDAS.

Beginning with a diagnosis of Asperger’s and then PANDAS, Bridget Pendergraft recalled how,  “it was literally like somebody flipped a switch and all of this came on,  totally out of the blue…We were scared … It was . . . → Read More: The Pendergrafts & Poarch Families: PANDAS in the News]]> http://pandasnetwork.org/2012/04/the-poarch-family-pandas-in-the-news/feed/ 0 Virginia/Maryland/DC Support Group Meeting 5/9/2012 http://pandasnetwork.org/2012/03/virginiamarylanddc-support-group-meeting-592012/ http://pandasnetwork.org/2012/03/virginiamarylanddc-support-group-meeting-592012/#comments Wed, 28 Mar 2012 13:32:16 +0000 Vickie Blavat http://pandasnetwork.org/?p=4110 When: May 9, 7:30-9 pm at Where: St. Raphael School, 1513 Dunster Road, Rockville, MD 20850, Duffy Center – Room 4.

Topic: Insurance Coverage for IVIG and other treatments.

If you wish to attend this support group meeting or have additional questions, please contact the coordinator, Teresa, at teechamp@gmail.com.

 

. . . → Read More: Virginia/Maryland/DC Support Group Meeting 5/9/2012]]> http://pandasnetwork.org/2012/03/virginiamarylanddc-support-group-meeting-592012/feed/ 0