Visit Us On FacebookVisit Us On Twitter
Newsletter Sign Up
Email:
2014 Symposium Widget  

Patient Brochures

Contact Us

Contact us at: pandasnetwork@gmail.com

Symposium Update: Book Your Hotel Suite Today!

PANDAS Network Website Image 2014

Have you booked your hotel suite for the West Coast PANDAS/PANS Symposium? Today (April 11) is the last day for the reduced room rate of $135/night.

Included in your stay at the Embassy Suites San Francisco Airport – Waterfront:

Reduced parking to $7 Complimentary shuttle service to San Francisco Airport (SFO) Free, full cooked-to-order . . . → Read More: Symposium Update: Book Your Hotel Suite Today!

Next Meeting Date for Columbus, Ohio PANDAS Support Group!

Our next PANDAS support group meeting will be Thursday, March 27th, at 7pm at Colin’s Coffee (3714 Riverside Dr., Columbus, OH 43221)

http://goo.gl/maps/jvK3r

Please contact me if you have any questions, concerns or comments at: uamamabear@gmail.com

PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

PandasNetworkLogo Vertical

 

PANDAS Network.org is proud to be sponsoring a pilot study led by Dr. Michael Cooperstock, MD, MPH.

The funds will be used to complete the Moleculera Labs testing of 23 serum samples obtained from PANDAS/PANS patients. Six antibodies will be tested: anti-dopamine receptors 1 and 2, anti-lysoganglioside, anti-tubulin, and the CaM KII . . . → Read More: PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

Massachusetts Legislation UPDATE: Call to Action!

Website header revised

 

The hearing at the State House on Wednesday went well, but our work still isn’t done!

We have until Friday March 14 to gather support and submit final testimony.  Everyone can contribute to this effort, whether you are a Massachusetts resident or not.   Help us to build momentum for this precedent-setting bill.

We . . . → Read More: Massachusetts Legislation UPDATE: Call to Action!

“Brain, Behavior, and Immunity”: Strep and Behavior

PandasNetworkLogo Vertical

The recent publication of the journal “Brain, Behavior, and Immunity” includes  Behavioral and neural effects of intra-striatal infusion of anti-streptococcal antibodies in rats.

“The present study tested the causal role of the antibodies by assessing the behavior of naïve rats following passive transfer of purified antibodies from GAS-exposed rats. Immunoglobulin G (IgG) purified from the . . . → Read More: “Brain, Behavior, and Immunity”: Strep and Behavior

PANDAS in the News: The Trujillo Family

PandasNetworkLogo Vertical

Photo Credit: saukvalley.com

 

The Trujillo Family experience is featured in the February Sauk Valley article, “Family struggles with rare disorder: Disease poses unique challenges amid medical skeptics”.

In the article, the family shares their daughter, Kloey’s, journey with PANDAS., from misdiagnosis to the ongoing difficulty of funding needed treatment.

 

 

The family . . . → Read More: PANDAS in the News: The Trujillo Family

AZ PANDAS/PANS Proclamation Passes 29-0!

AZ Awareness day

 

The Arizona bill proclaiming October 9th of each year as PANS/PANDAS Awareness Day, passed the Senate 29-0!

To view the 2014 SENATE RESOLUTION 1007: A RESOLUTION PROCLAIMING OCTOBER 9 OF EACH YEAR AS PANS, PANDAS AND PITAND AWARENESS DAY IN THE STATE OF ARIZONA, please visit http://www.azleg.gov/legtext/51leg/2r/bills/sr1007s.pdf.

Thank you to Paul Ryan for . . . → Read More: AZ PANDAS/PANS Proclamation Passes 29-0!

Inflammation in Children and Adolescents With Neuropsychiatric Disorders

In the March 2014 issue of the Journal of the American Academy of Child and Adolescent Psychiatry , the review article “Inflammation in Children and Adolescents With Neuropsychiatric Disorders: A Systematic Review” by Drs. Mitchell and Goldstein was published.

In this review, preliminary findings showed evidence for elevated markers of inflammation in children and . . . → Read More: Inflammation in Children and Adolescents With Neuropsychiatric Disorders

Massachusetts Legislation

Website header revised

UPDATED 3/20/2014

 

3/20/2014

Dear PANDAS Friends and Family,

Great news!!!!!!!

Yesterday was the deadline for the Joint Committee on Financial Services to take action on H.984: An act relative to insurance coverage for PANDAS/PANS. The committee voted to extend their deadline until the last day of the formal session (July . . . → Read More: Massachusetts Legislation

Arizona Senate Resolution for PANDAS/PANS Bill

PANDAS Network Sun

UPDATE 2/22/2014 via @AZSenateGOP

Third Read SR 1007 PANDAS; PITAND; PANS; awareness day passes 29-0

— AZSenateRepublicans (@AZSenateGOP) February 21, 2014

 

On February 5th, the Arizona Senate Health Committee met to consider a PANS/PANDAS/PITANDS resolution. The resolution gave a summary of the three conditions, declared October 9th as PANS Awareness Day and resolved that . . . → Read More: Arizona Senate Resolution for PANDAS/PANS Bill