If you are holding a PANDAS/PANS Awareness Day event in your area and would like PANDAS Network to list it, please contact us at firstname.lastname@example.org.
Please include the following:
Organizer’s name and contact info, name of event, FirstGiving page link (if applicable), and event info such as WHEN, WHERE, and if REGISTRATION or . . . → Read More: 2014 Awareness Day Events
In Spring 2013, 3rd grader, Johnny from Illinois, developed PANDAS after a strep infection. He learned that other children had the same “rare illness” and that money for PANDAS-PANS awareness and treatment was needed. His mother found help through our parents support network. In appreciation, Johnny raised over $100 during a neighborhood yard . . . → Read More: Fundraiser: PANDAS Kids Taking Action!
The PANDAS Climb By Wendy N.
PANDAS/PITAND/PANS Advocacy and Support of Illinois was thrilled to be able to secure our state’s first ever PANDAS Awareness Day last year. With the help of a few key volunteers in our group we were able to create an event that was memorable for us, as well . . . → Read More: 2013 Event Highlight: The PANDAS Climb
Pedal for PANDAS By Hayley F.
On November 22, 2013, the Wiederhorn and Flack families hosted an charity indoor cycle ride to raise funds and awareness for PANDAS Network.
Debbie Wiederhorn and Hayley Flack and their husbands Alex and Brian met as preschool parents with their first born kids in 2005. In the . . . → Read More: 2013 Event Highlight: Pedal for PANDAS
YOU have the power to make a difference By Robin M.
My child changed, almost overnight right around his third birthday.
He went from a loving, sweet child to a screaming, angry meltdown about to happen at any given moment. His meltdowns lasted anywhere from four to six hours and we were . . . → Read More: 2013 Event Highlight: YOU have the power to make a difference
The next Columbus, Ohio PANDAS support group meeting will be Thursday, August 7th, at 7pm at Colin’s Coffee (3714 Riverside Dr., Columbus, OH 43221) Any questions? Email Sharla at: email@example.com
The April 2014 issue of NDNR highlights the very well written, multi-page article by Dr. Steven Rondeau, ND, BCIA-EEG, “Elucidating PANDAS Follow-Up Discussion of an immune-Mediated Mental illness”.
Dr. Rondeau touches on a variety of aspects of the disorders, including history and the Catch 22 of diagnosing and treatment. As he states, “Part of the . . . → Read More: New PANS Article in Naturopathic Doctor News & Review
Earlier this year, The Journal of Nuclear Medicine published “Basal ganglia inflammation in children with neuropsychiatric symptoms” by Drs. Kumar, Williams, Musik and Chugani.
The research showed a significant difference in brain inflammation patterns between PANDAS children and those with Tourette Syndrome (TS). This information was obtained through special PET scanning.
These findings . . . → Read More: Neuroinflammation Varies Between PANDAS & TS: New Research Findings
2014 PANDAS/PANS Awareness Day is quickly approaching and we need your help in making it a success!
Since the majority of 2013 proclamations were only active for one year, most states will have to re-request a PANDAS/PANS Awareness Day Proclamation in 2014 or begin the process of securing a Resolution.
The map below will show . . . → Read More: 2014 PANDAS/PANS Awareness Day Proclamation: Time to Submit!