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PANS child, Greg Davidson, was a source of inspiration along side his doctor, Dr. Jan Kirwinsky in Dr. Jan Kirwinsky & Greg Davidson: PANS Disease 2/20/12 on wkyc.com. In the interview an overall explanation of PANDAS and PANS is given including how it can be confused with other disorders and how strep and other bacteria can . . . → Read More: A PANS Child Helps with Awareness . After a long wait, THE White Paper is out! To be exact, it is titled “From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)”. Dr. Swedo herself sent the paper to PANDAS Network.org’s founder, Diana Pohlman, and gave us permission to pass it on to . . . → Read More: Dr. Swedo’s White Paper on PANDAS/PANS is Released! . Parentsmagazine just issued the great article focusing on PANDAS, PANDAS: A Scary and Controversial Disorder. This 5 page article includes personal stories such as the Bossman family and Diana Pohlman, founder of PANDAS Network.org. It also discuss the various possible causes that may cause the disorder to surface. . Some interesting information is . . . → Read More: Parents Magazine Article on PANDAS . The Suthar Family bring awareness to their son’s struggle with PANDAS in Pandas Illness / Joshua’s Missing Peace. The interview begins by referring to multiple families in the St. Louis area that have been diagnosed with the disorder and their difficult time finding help. The video then branches off to an one on . . . → Read More: The Suthar Family: PANDAS in the News The Nelson family shares their experience with PANDAS in Strep virus in kids linked to OCD, Tourette’s. In the WKRN Nahsville story, the Nelson family explains how her son’s sudden onset of tics and OCD occurred after a H1N1 infection and multiple bouts of strep. It took a dozen doctors, a book, and an out . . . → Read More: The Nelson Family: PANDAS in the News Dr. Elizabeth Latimer . DC area families along with PANDAS Network.org’s Scientific Advisory Board member, Dr. Elizabeth Latimer, are featured in NBC Washington’s Could Strep Throat Cause OCD? The news segment visits two families diagnosed with PANDAS and features an interview with Dr. Latimer. Dr Latimer, who has treated 100+ PANDAS cases in the . . . → Read More: Dr. Latimer on NBC Washington Dr. Rosario Trifiletti Dr. Trifiletti posted this statement earlier in regards to the students in Le Roy… STATEMENT ON LEROY, NY CLUSTER “I have now had the opportunity to review laboratory data collected in a standardized fashion on eight of the nine girls I examined in Leroy, NY on 1/29/12. Five of eight girls . . . → Read More: Dr. Trifiletti’s Statement in Regards to Le Roy Students
The Kim Foundation, an organization devoted to educating, supporting and removing the stigma associated with mental illness, published their recent radio podcast devoted to PANDAS.
PANDAS — not the bears — the pediatric illness Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections, was the subject of Not Alone this week. These illnesses . . . → Read More: The Kim Foundation Radio Broadcast SAVE THE DATE!
Bay Area PANDAS Parents Symposium Saturday April 28, 2012 10am-5pm Embassy Suites, Burlingame CA (by the San Francisco Airport )
Details on how to RSVP will be coming soon! . Keep up to date by visiting them at PandasParentSymposium.blogspot.com . . What to Expect: A full day of . . . → Read More: Save the Date! PANDAS Parents Symposium 04/28 Not many people haven’t heard of the multiple students in Le Roy, NY who experienced a sudden onset of Tourette-like movements. To date, there are doctors claiming it could be conversion disorder, groups thinking it may be environmental, some insisting it is vaccines. Then there is the other possibility that is getting more and . . . → Read More: Could the Le Roy Students have PANDAS? Summary of Recent Events & Scientific American Article |
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