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Media Library

NIMH Director Blog Post on PANDAS

NIMH Director, Dr. Tom Insel, blog’s about PANDAS in “From Paresis to PANDAS & PANS“.  This post is part of the recent burst of attention given to PANDAS and the newly proposed syndrome PANS including the  recent NIMH press release, updated NIMH website, and Drs. Swedo, Leckman, and Rose’s White Paper published in Pediatric and Therapeutics.

 

From Paresis to PANDAS . . . → Read More: NIMH Director Blog Post on PANDAS

Arizona Support Group Meeting 4/21/2012

. AZ PANDAS Parent Support Group Meeting

When: April 21, 2012 Time: 1:00pm Where: Coco’s Restaurant, 4700 North Scottsdale Road,  Scottsdale, AZ 85251 RSVP: Please rvsp if you plan to attend this meeting, by sending an email to azpandas1@gmail.com

If you have any additional questions about this meeting or group, contact Kari at azpandas1@gmail.com.

. . . → Read More: Arizona Support Group Meeting 4/21/2012

NIH Issues Press Release

NIH News

. “As the field moves toward agreement on this broadened syndrome, affected youth will be more likely to receive appropriate care, regardless of whether they are seen by a neurologist, pediatrician or child psychiatrist,” -NIMH Director Thomas R. Insel, M.D. .

The NIH has issued the press release Possible causes of sudden onset OCD . . . → Read More: NIH Issues Press Release

IOCDF Opens 2012 Conference Registration

Registration is now open for the July 27-29, 2012 IOCDF conference in Chicago!

Once again, the IOCDF has coordinated numerous PANDAS related presentations and an evening Q and A.

The PANDAS tracks include:

Friday 07/27

Can my Child Wake Up with Severe OCD? (Presenters: Dr. Elizabeth Latimer and Parent Advocate Vickie Blavat) Sudden Onset OCD: . . . → Read More: IOCDF Opens 2012 Conference Registration

Registration Open for California PANDAS Conference

 

From event organizer: Amy Joy Smith, Nurse Practitioner

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PANDAS Parents Symposium is very excited to hold the first-ever PANDAS conference in California for families and interested physicians!

Registration is $55 and includes a full day of speakers and dialogues, from 10am – 5pm, Buffet lunch and afternoon refreshment included.

 

 

. Some topics of . . . → Read More: Registration Open for California PANDAS Conference

NIMH Website Updates the PANDAS Information Page

The NIMH has been busy updating the PANDAS information page on their website! These updates quickly followed the release of the White Paper, “From Research Subgroup to Clinical Syndrome: Modifying the PANDAS Criteria to Describe PANS (Pediatric Acute-onset Neuropsychiatric Syndrome)” by Drs. Swedo, Leckman, and Rose.

 

To read the newly updated NIMH PANDAS page, . . . → Read More: NIMH Website Updates the PANDAS Information Page

The Nawara Family: PANDAS in the News

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Across the nation, PANDAS families have been reaching out to the media to spread continued awareness and edcuate the public about PANDAS and PANS.  The Nawara family from Naperville, IL is now added to that list of people who are opening up about their experience with the disorder in the article “Mom . . . → Read More: The Nawara Family: PANDAS in the News

Harvard & Dr. Jeff Szymanski talks PANDAS/PANS!

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Harvard Health Publication of Harvard Medical School publishes an  article about PANDAS/PANS thanks to  Dr. Jeff Szymanski! The article is titled “Can an Infection Suddenly Cause OCD?“.

Dr. Jeff Szymanski  is the executive director at the International OCD Foundaton and a Clinical Instructor of Psychology at Harvard Medical School.  The article brings attention to Dr. Swedo recently released . . . → Read More: Harvard & Dr. Jeff Szymanski talks PANDAS/PANS!

PANDAS Article in Health Section of TODAY

 

“You have a treatable and perhaps preventable form of mental illness… While we’re debating, these kids could be treated.”

-Dr. Susan Swedo

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The ”must read”, informative article Sudden OCD in kids? Culprit may be strep throat, other infections appears in the Health section on TODAY (msn) discusses PANDAS/PANS.  

The . . . → Read More: PANDAS Article in Health Section of TODAY

IOCDF Releases Public Service Announcements

In their efforts to raise awareness for PANDAS and PANS, the IOCDF ( International OCD Foundation) has issued their first PANDAS/PANS PSA’s and press release! . The newly released Public Service Announcements is done in two installments. The first is by Dr. Michael Jenike, Chair of the IOCDF Scientific Advisory Board. The second is done . . . → Read More: IOCDF Releases Public Service Announcements