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West Coast PANDAS/PANS Symposium

 PANDAS Network Website Image 2014


Bioresource NeuroScience



Lee Silsby Compounding Pharmacy


Morning Session – Latest Research and Treatment Practices – Q&A to Follow

Dr. Susan Swedo, Lead Investigator into PANDAS/PANS at the NIMH
Topic: PANDAS, PANS and Other Forms of Childhood-onset Obsessive Compulsive Disorder – Latest research into the sydrome, treatment and recovery

Dr. Jennifer Frankovich, Pediatric Rheumatologist, Director of PANS Clinic at Stanford University
Topic: PANS-A new definition of pediatric acute neuropsychiatric onsets – Latest findings and new treatment protocols at the Stanford PANS Clinic

Dr. Melanie Burgos-Alarcio, Pediatric Neurologist, Leading PANDAS/PANS Physician
Topic: The Brain and the Immune System: Newer Concepts of Encephalopathy

Dr. Michael Cooperstock, Chief, Division of Infectious Diseases and Rheumatology Department of Child Health, Columbia, MO
Topic: “Pediatric Acute-onset Neuropsychiatric Syndromes: What are the Questions?” – A look into the efforts to delineate what is not known – particularly, but not exclusively, from an infectious diseases standpoint – and how the children and their families help researchers and providers work towards finding solutions.

Amy Smith, Nurse Practitioner, Integrative Medicine, Director PANS Program, Hill Park Medical Center
Topic: Integrative Approaches in the Treatment of PANDAS and PANS

Afternoon Breakout Training and Discussion Sessions

For Medical Professionals – Open Discussion – Sit with the panel (Drs. Swedo, Frankovich and Burgos-Alarcio) to discuss your questions and concerns about diagnosing and treating PANDAS/PANS.

For Education Professionals – Lecture and Discussion – Dr. Jamie Candelaria-Greene to discuss specific recommendations for accommodations, assessments, compensatory strategies, and other supportive services.

For Parents – Session #1 Symptom Support with Dr. Margo Thienemann – A tool kit of skills for parents to cope with OCD, Anxiety and Mood Issues with children at onset thru healing. Open dialogue discussions will follow.

For Parents – Session #2 Family Survival and Recovery with Dr. Eric Fier – A tool kit of how to heal and rebuild your family due to the trauma of PANDAS and PANS. Open dialogue discussion will follow.


Closing Session for All Attendees

Advocacy Efforts – Legislative and Educational
Personal Experiences – Overcoming the Odds and Healing
Men’s Group – Small group meeting with Dads to discuss your unique challenges . This group will be led by Dr. Eric Fier.

Featured Speakers:

Dr. Susan Swedo 
Chief Pediatrics and Developmental Neuroscience Branch at the NIMH

Dr. Jennifer Frankovich
Pediatric Rheumatologist, Director PANS Clinic, Lucile Packard Children’s Hospital Stanford

Dr. Melanie Alarcio
Pediatric Neurologist, Leading PANDAS/PANS Physician

Dr. Michael Cooperstock, MD, MPH
Chief, Division of Infectious Diseases and Rheumatology Department of Child Health, Columbia, MO, Professor Emeritus, Univ. of Missouri School of Medicine

Amy Smith
Nurse Practitioner, Integrative Medicine,Director PANDAS/PANS Program, Hill Park Medical Center

Dr. Eric Fier
Child, Adolescent and Adult Psychiatry, Leading PANDAS/PANS Physician
Dr. Jamie Candelaria-Greene
Education Specialist, Visiting Scholar, UC Berkeley 

Dr. Margo Thienemann
Child & Adolescent Psychiatrist

Diana Pohlman
Executive Director, PANDAS Network

Sarah Jane Alleman
PANDAS Mom, Advocate, and Dedicated Blogger

Personal Testimonials by Lance Smith, Vanessa Vann, and other PANDAS/PANS children