PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

PandasNetwork

 

PANDAS Network.org is proud to be sponsoring a pilot study led by Dr. Michael Cooperstock, MD, MPH.

The funds will be used to complete the Moleculera Labs testing of 23 serum samples obtained from PANDAS/PANS patients. Six antibodies will be tested: anti-dopamine receptors 1 and 2, anti-lysoganglioside, anti-tubulin, and the CaM KII release assay, and a new anti-serotonin receptor test.

The pilot study will use daily symptom tables to look for relationships between symptoms and intercurrent illnesses, and whether discrete symptom flare-ups are more common at first and then level off with time. The study will attempt to determine whether any of the six antibodies tend to group together, and whether any antibody or combination of antibodies relate to specific clinical symptoms;  to the overall severity of symptoms; or even apparent responses to various treatments.

“Our hope for this pilot study is that it will provide information to help inform the design of a multi-center prospective study, one that will be compelling enough to attract substantial national funding. Our collaborating group plans to meet (in the summer) to begin discussions about how best to proceed,” said Dr. Michael Cooperstock, MD, MPH.

Dr. Michael Cooperstock, MD, MPH is the Chief, Division of Infectious Diseases and Rheumatology Department of Child Health, Columbia, MO, Professor Emeritus, Univ. of Missouri School of Medicine.

 

 

Dr. Michael Cooperstock, MD, MPH to Present at Upcoming PANDAS/PANS Symposium!

We are happy to announce Dr. Cooperstock has been added to the list of speakers to present at the West Coast PANDAS/PANS Symposium on April 26, 2014 in California!

Dr. Cooperstock will be joined by Dr. Susan Swedo (Chief Pediatrics and Developmental Neuroscience Branch at the NIMH), Dr. Jennifer Frankovich (Pediatric Rheumatologist, Director PANS Clinic, Lucile Packard Children’s Hospital Stanford), Dr. Melanie Alarcio (Pediatric Neurologist, Leading PANDAS/PANS Physician), Amy Smith (Nurse Practitioner, Integrative Medicine,Director PANDAS/PANS Program, Hill Park Medical Center , Dr. Eric Fier (Child, Adolescent and Adult Psychiatry, Leading PANDAS/PANS Physician), Dr. Jamie Candelaria-Greene (Education Specialist, Visiting Scholar, UC Berkeley), and Dr. Margo Thienemann (Child & Adolescent Psychiatrist).

Registration is now open. For more information, please visit http://pandasparentsymposium.blogspot.com/.

 

 

NIMH to Host PANDAS Tweet Chat 5/8/2013

The NIMH will be hosting a tweet chat on May 8 as part of National Children’s Mental Health Awareness Day from 11 a.m. to noon ET.

The NIMH’s Dr. Susan Swedo and Dr. Paul Grant are scheduled to participate.

If you are interested in taking part, you will need a twitter account. From 11-12 ET on 5/8/2013, simply search for the hash tag #NIMHchats on twitter and the posts will come up. Then, when YOU post, make sure you add the same hashtag #NIMHchats with every post. This is how your tweets become part of the conversation.

To read more about this upcoming tweet chat, please visit http://www.nimh.nih.gov/news/science-news/2013/twitter-chat-on-pandas-pans.shtml.