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Contact us at: pandasnetwork@gmail.com

PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

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PANDAS Network.org is proud to be sponsoring a pilot study led by Dr. Michael Cooperstock, MD, MPH.

The funds will be used to complete the Moleculera Labs testing of 23 serum samples obtained from PANDAS/PANS patients. Six antibodies will be tested: anti-dopamine receptors 1 and 2, anti-lysoganglioside, anti-tubulin, and the CaM KII . . . → Read More: PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

“Brain, Behavior, and Immunity”: Strep and Behavior

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The recent publication of the journal “Brain, Behavior, and Immunity” includes  Behavioral and neural effects of intra-striatal infusion of anti-streptococcal antibodies in rats.

“The present study tested the causal role of the antibodies by assessing the behavior of naïve rats following passive transfer of purified antibodies from GAS-exposed rats. Immunoglobulin G (IgG) purified from the . . . → Read More: “Brain, Behavior, and Immunity”: Strep and Behavior

Have you completed the RETROSPECTIVE ONLINE SURVEY?

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Have you completed the RETROSPECTIVE ONLINE SURVEY?

http://pandasnetwork.org/survey/

The study will likely reach its needed 500 respondents in a few weeks, but will remain open until the end of year.

If you have done the survey yet, we suggest doing it NOW before it closes. If you started the survey but . . . → Read More: Have you completed the RETROSPECTIVE ONLINE SURVEY?

Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

 

In the newly published paper Dopamine Receptor Autoantibodies Correlate with Symptoms in Sydenham’s Chorea , Drs. Ben-Pazi, Stoner, and Cunningham linked, for the first time, autoimmunity with neuropsychiatric symptoms.

This paper is based on findings in children with SC (Sydenham’s Chorea), but lays the foundation for PANDAS and PANS as well.

Over the past . . . → Read More: Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research

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PANDAS Network.org is excited to give donors an easy way to contribute to Dr. Dritan Agalliu’s PANDAS research!

Dr. Dritan Agalliu studies the molecular, cellular and genetic analysis of mammalian blood-brain barrier development and the role of the barrier in disease pathogenesis. Dr. Agalliu research plans to explain the mechanisms that break down the blood-brain . . . → Read More: Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research

PANDAS Network.org Joins the AARDA’s NCAPG

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PANDAS Network.org is honored to be accepted into the AARDA’s NCAPG. The NCAPG is the National Coalition of Autoimmune Patient Groups and it is supported and facilitated by the American Autoimmune Related Diseases Organization. The mission of the group is “To consolidate the voice of autoimmune disease patients and to promote increased education, . . . → Read More: PANDAS Network.org Joins the AARDA’s NCAPG

Online Research Study Now Active: “Retrospective” Survey

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This survey is closed. Thank you for participating!

. PANDAS-PANS-PITAND Retrospective Research Study Invitation .

You are invited to participate in an online survey research study from the University at Buffalo in collaboration with Dr. Tanya Murphy from the University of South Florida to learn more about the symptoms, diagnosis, interventions, and clinical course of . . . → Read More: Online Research Study Now Active: “Retrospective” Survey

Antibiotic Trial for PANDAS & PANS is Recruiting!

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The Rothman Center for Neuropsychiatry is looking for volunteers to participate in a research study on antibiotic treatment for obsessive compulsive disorder due to PANS/PANDAS phenotype. To learn more about this AZITHROMYCIN study, please refer to their recruitment flyer and the Clinical Trial page.

A printable pdf  version of the recruitment flyer can be found at http://pandasnetwork.org/wp-content/uploads/2013/05/Antibiotic_Brochure.pdf.

. . . → Read More: Antibiotic Trial for PANDAS & PANS is Recruiting!

IVIG Study Needs Final Participants!

 

The NIMH PANDAS IVIG study needs its final participants. If your child is a recent onset case (6 months or less) with a strep connection (this includes infection, direct known exposure from sibling or friend, etc.), please contact one of the names below to see if your child qualifies. This study is of no cost to participants.

. . . → Read More: IVIG Study Needs Final Participants!

URGENT! IVIG study needs only 5 more participants!

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. URGENT! IVIG study needs only 5 more participants!

Only 5 more participants are needed to complete the PANDAS IVIG study! The NIMH is seeking new onset cases (within the last year) with a strep connection.

To find out if your child qualifies or for more information, please contact one of the following:

Rachel Kushner . . . → Read More: URGENT! IVIG study needs only 5 more participants!