The Rothman Center for Neuropsychiatry is looking for volunteers to participate in a research study on antibiotic treatment for obsessive compulsive disorder due to PANS/PANDAS phenotype. To learn more about this AZITHROMYCIN study, please refer to their recruitment flyer and the Clinical Trial page.
A printable pdf version of the recruitment flyer can be found at http://pandasnetwork.org/wp-content/uploads/2013/05/Antibiotic_Brochure.pdf.
. . . → Read More: Antibiotic Trial for PANDAS & PANS is Recruiting!
The NIMH PANDAS IVIG study needs its final participants. If your child is a recent onset case (6 months or less) with a strep connection (this includes infection, direct known exposure from sibling or friend, etc.), please contact one of the names below to see if your child qualifies. This study is of no cost to participants.
. . . → Read More: IVIG Study Needs Final Participants!
. URGENT! IVIG study needs only 5 more participants!
Only 5 more participants are needed to complete the PANDAS IVIG study! The NIMH is seeking new onset cases (within the last year) with a strep connection.
To find out if your child qualifies or for more information, please contact one of the following:
Rachel Kushner . . . → Read More: URGENT! IVIG study needs only 5 more participants!
Information on a few upcoming studies in Europe can be found at EMTICS.eu. Among the members of the External Advisory Board is Dr. J. Leckman, who is also involved in the current NIMH IVIG study. Dr. Leckman also sits on the PANDAS Network.org Scientific Advisory Board.
From the Project Summary:
EMTICS will undertake . . . → Read More: Upcoming European Studies
Dr. Tanya Murphy’s Antibiotic Study is currently recruiting participants.
Full details, including description, inclusion, and exclusion criteria and CONTACT INFORMATION can be found in Antibiotic Treatment Trial for the PANDAS/PANS Phenotype .
. . . → Read More: Azithromycin Study is Currently Recruiting
FOLLOW UP 5/20/12: Taking steps to understand PANDAS From the Office of State Sen. KEVIN WITKOS “While this bill passed unanimously in the State Senate, it unfortunately did not see a vote in the House of Representatives.” . . Original Post: We have ground breaking news to report! The State of Connecticut Senate . . . → Read More: Connecticut Senate Passes Bill for PANDAS Research
The long awaited TEL AVIV STUDY has been published!!! The study is titled “Behavioral, Pharmacological, and Immunological Abnormalities after Streptococcal Exposure: A Novel Rat Model of Sydenham Chorea and Related Neuropsychiatric Disorders” has recently been released in the newest issue of Neuropsychopharmacology!
Only the abstract of this study is available for free to the public. This . . . → Read More: Tel Aviv/Rat Model Study Published!
The research study Neurocognitive functioning in youth with pediatric autoimmune neuropsychiatric disorders associated with streptococcus shows that neurocognitive functioning can be impaired with children who have PANDAS.
This study, done by Drs. Murphy, Storch, Lewin and Mutch in 2011, showed that neurocognitive impairments (including visuospatial recall memory) can be significantly impaired in PANDAS youths. . . . → Read More: Research: Neurocognitive functioning and PANDAS
A benefit concert being held in Solon, Ohio this coming February is featured in the news article Benefit to help fight difficult pediatric disorder PANDAS . And it is being hosted by a 7th grader diagnosed with PANS/PANDAS!
“Songs of Broadway – a P.A.N.S. Benefit Concert”
When: Sunday, February 12, 2012
Where: . . . → Read More: 7th Grader Hosts PANDAS Benefit Concert
It’s crunch time, everyone! We need every parent to step up to the plate and pass the word TODAY about the NIMH IVIG study.
PANDAS Network.org received notification that the NIMH needs only 3 more participants then they will be able to do an interim analysis of the progress of the study!
We know the . . . → Read More: IVIG Study Needs Participants ASAP!