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Contact us at: pandasnetwork@gmail.com

Neuroinflammation Varies Between PANDAS & TS: New Research Findings

PANDAS Network Sun

 

Earlier this year, The Journal of Nuclear Medicine published “Basal ganglia inflammation in children with neuropsychiatric symptoms” by Drs. Kumar, Williams, Musik and Chugani.

The research showed a significant difference in brain inflammation patterns between PANDAS children and those with Tourette Syndrome (TS). This information was obtained through special PET scanning.

These findings . . . → Read More: Neuroinflammation Varies Between PANDAS & TS: New Research Findings

Towson University Seeking Study Participants

PANDAS Network Sun

Towson University is seeking participants for a research study investigating the educational experiences of children and families with PANDAS or PANS. The study is being conducted by Primary Investigator, Patricia Rice Doran, Ed.D.

The study includes interviews, preferably in-person, but via telephone is acceptable. Please see the information below if you are interested in particiating.

. . . → Read More: Towson University Seeking Study Participants

PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

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PANDAS Network.org is proud to be sponsoring a pilot study led by Dr. Michael Cooperstock, MD, MPH.

The funds will be used to complete the Moleculera Labs testing of 23 serum samples obtained from PANDAS/PANS patients. Six antibodies will be tested: anti-dopamine receptors 1 and 2, anti-lysoganglioside, anti-tubulin, and the CaM KII . . . → Read More: PANDAS Network Sponsors Study Led by Dr. Michael Cooperstock

“Brain, Behavior, and Immunity”: Strep and Behavior

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The recent publication of the journal “Brain, Behavior, and Immunity” includes Behavioral and neural effects of intra-striatal infusion of anti-streptococcal antibodies in rats.

“The present study tested the causal role of the antibodies by assessing the behavior of na├»ve rats following passive transfer of purified antibodies from GAS-exposed rats. Immunoglobulin G (IgG) purified from the . . . → Read More: “Brain, Behavior, and Immunity”: Strep and Behavior

Have you completed the RETROSPECTIVE ONLINE SURVEY?

flyer survey website

Have you completed the RETROSPECTIVE ONLINE SURVEY?

http://pandasnetwork.org/survey/

The study will likely reach its needed 500 respondents in a few weeks, but will remain open until the end of year.

If you have done the survey yet, we suggest doing it NOW before it closes. If you started the survey but . . . → Read More: Have you completed the RETROSPECTIVE ONLINE SURVEY?

Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

 

In the newly published paper Dopamine Receptor Autoantibodies Correlate with Symptoms in Sydenham’s Chorea , Drs. Ben-Pazi, Stoner, and Cunningham linked, for the first time, autoimmunity with neuropsychiatric symptoms.

This paper is based on findings in children with SC (Sydenham’s Chorea), but lays the foundation for PANDAS and PANS as well.

Over the . . . → Read More: Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms

Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research

Dr Agalliu

PANDAS Network.org is excited to give donors an easy way to contribute to Dr. Dritan Agalliu’s PANDAS research!

Dr. Dritan Agalliu studies the molecular, cellular and genetic analysis of mammalian blood-brain barrier development and the role of the barrier in disease pathogenesis. Dr. Agalliu research plans to explain the mechanisms that break down the blood-brain . . . → Read More: Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research

PANDAS Network.org Joins the AARDA’s NCAPG

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PANDAS Network.org is honored to be accepted into the AARDA’s NCAPG. The NCAPG is the National Coalition of Autoimmune Patient Groups and it is supported and facilitated by the American Autoimmune Related Diseases Organization. The mission of the group is “To consolidate the voice of autoimmune disease patients and to promote increased education, . . . → Read More: PANDAS Network.org Joins the AARDA’s NCAPG

Online Research Study Now Active: “Retrospective” Survey

PANDAS Network Sun

This survey is closed. Thank you for participating!

. PANDAS-PANS-PITAND Retrospective Research Study Invitation .

You are invited to participate in an online survey research study from the University at Buffalo in collaboration with Dr. Tanya Murphy from the University of South Florida to learn more about the symptoms, diagnosis, interventions, and clinical course of . . . → Read More: Online Research Study Now Active: “Retrospective” Survey

Antibiotic Trial for PANDAS & PANS is Recruiting!

PANDAS Network Sun

The Rothman Center for Neuropsychiatry is looking for volunteers to participate in a research study on antibiotic treatment for obsessive compulsive disorder due to PANS/PANDAS phenotype. To learn more about this AZITHROMYCIN study, please refer to their recruitment flyer and the Clinical Trial page.

A printable pdf version of the recruitment flyer can be found . . . → Read More: Antibiotic Trial for PANDAS & PANS is Recruiting!