Have you completed the RETROSPECTIVE ONLINE SURVEY?
The study will likely reach its needed 500 respondents in a few weeks, but will remain open until the end of year.
If you have done the survey yet, we suggest doing it NOW before it closes. If you started the survey but . . . → Read More: Have you completed the RETROSPECTIVE ONLINE SURVEY?
In the newly published paper Dopamine Receptor Autoantibodies Correlate with Symptoms in Sydenham’s Chorea , Drs. Ben-Pazi, Stoner, and Cunningham linked, for the first time, autoimmunity with neuropsychiatric symptoms.
This paper is based on findings in children with SC (Sydenham’s Chorea), but lays the foundation for PANDAS and PANS as well.
Over the past . . . → Read More: Cunningham Paper Links Autoimmunity with Neuropsychiatric Symptoms
PANDAS Network.org is excited to give donors an easy way to contribute to Dr. Dritan Agalliu’s PANDAS research!
Dr. Dritan Agalliu studies the molecular, cellular and genetic analysis of mammalian blood-brain barrier development and the role of the barrier in disease pathogenesis. Dr. Agalliu research plans to explain the mechanisms that break down the blood-brain . . . → Read More: Donate to Dr. Agalliu’s Lab: UC Irvine PANDAS Research
*The survey takes approximately 30-40 minutes to complete.
. PANDAS-PANS-PITAND Retrospective Research Study Invitation .
You are invited to participate in an online survey research study from the University at Buffalo in collaboration with Dr. Tanya Murphy from the University of South Florida to learn more about the symptoms, diagnosis, interventions, and clinical course of children . . . → Read More: Online Research Study Now Active: “Retrospective” Survey
The Rothman Center for Neuropsychiatry is looking for volunteers to participate in a research study on antibiotic treatment for obsessive compulsive disorder due to PANS/PANDAS phenotype. To learn more about this AZITHROMYCIN study, please refer to their recruitment flyer and the Clinical Trial page.
A printable pdf version of the recruitment flyer can be found at http://pandasnetwork.org/wp-content/uploads/2013/05/Antibiotic_Brochure.pdf.
. . . → Read More: Antibiotic Trial for PANDAS & PANS is Recruiting!
The NIMH PANDAS IVIG study needs its final participants. If your child is a recent onset case (6 months or less) with a strep connection (this includes infection, direct known exposure from sibling or friend, etc.), please contact one of the names below to see if your child qualifies. This study is of no cost to participants.
. . . → Read More: IVIG Study Needs Final Participants!
. URGENT! IVIG study needs only 5 more participants!
Only 5 more participants are needed to complete the PANDAS IVIG study! The NIMH is seeking new onset cases (within the last year) with a strep connection.
To find out if your child qualifies or for more information, please contact one of the following:
Rachel Kushner . . . → Read More: URGENT! IVIG study needs only 5 more participants!
The following is one of two parent summaries of the 2012 IOCDF Conference. We advise the reader to view both summaries as there are some overlaps, but also unique observations in both. Parent Summary #2 can be found here.
Parent Summary #1 (by parent volunteer, Vickie)
The IOCDF conference was held July 27-29th in . . . → Read More: IOCDF Conference: Parent Summary #1
Information on a few upcoming studies in Europe can be found at EMTICS.eu. Among the members of the External Advisory Board is Dr. J. Leckman, who is also involved in the current NIMH IVIG study. Dr. Leckman also sits on the PANDAS Network.org Scientific Advisory Board.
From the Project Summary:
EMTICS will undertake . . . → Read More: Upcoming European Studies