Doctors have found that a 5 day course of prednisone will make PANDAS symptoms stop altogether. It is a temporary fix. But it proves that an inflammatory reaction in the child is occurring. It may make doctors more inclined to continue with antibiotics until they get more information from our network of doctors on the nature of PANDAS.
Some very extreme and rare cases of PANDAS, where there is clearly encephalitic catatonia, disorientation, hallucinations, beyond the typical PANDAS OCD, Tics, Anxiety issues – have benefitted from one or two months of steroids when administered by a professional Pediatric Neurologist. In our group of 70 children only approx. 5 children have been in this category.
No doses will be given here for the steroids as it is well understood by medical professionals what is the acceptable limit and steroids must be used with caution. The use of steroids is well understood in the medical community for encephalitic matters.