I’m trapped. It hurts more than anything I have ever felt. No matter how hard I try, I can’t escape myself. I scream again, unable to see or hear anyone around me. I fall, not feeling the pressure as I hit the ground. Everything is blurry- I grab onto whatever I can feel; anything to… Continue reading Alessia’s PANDAS Story
Author: carrie
Reducing OCD Symptoms in Children with PANDAS/PANS
For children with PANDAS/PANS with OCD, ERP therapy can help them reduce their OCD symptoms. PANDAS Network is partnering with NOCD to make virtual ERP available. NOCD accepts many insurance plans and is also offering a reduced rate of $100 per session for people not using insurance, through the end of May. NOCD could also… Continue reading Reducing OCD Symptoms in Children with PANDAS/PANS
100s of PANS Families Create Change, 3 New Nonprofits & 80% to Our Research Funding Goal
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NIMH Awards Yale $3 Million to PANDAS-PANS Research, Invasive Group A Strep Surveillance, and End-of-Year Match
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Read our 2022 Announcement of Grant Awards, Major Donors, & More
Read about the grand awards, major donors, and more on our latest newsletter here
PANDAS Treatment Options
Starting treatment for PANDAS early on is one of the most effective ways to manage symptoms and put the disease into remission. Below we outline some of the main PANDAS treatment options that are currently available. Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) occur after an infection,… Continue reading PANDAS Treatment Options
A Mother’s Thoughts
By Stacie Manna “PANDAS mom” is a title I would not wish on anyone. PANDAS, standing for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections, is a disorder estimated to affect 1 in 200 children. It is common for a child to go to sleep one night and wake up the next day as if… Continue reading A Mother’s Thoughts