The PANDAS Network has been busy this year. We created a PANDAS/PANS Research Roadmap to improve global research collaboration. Our brand-new website got launched. We organized a CME conference with the largest New York State healthcare network, Northwell Health. And we did all this and more while navigating a pandemic. As always, we are dedicated… Continue reading PANDAS Network: 2021 in Review
Rebecca Nowicki was six years old when her behavior dramatically changed following multiple strep infections. After learning about the resources, clinicians and support groups from PANDAS Network, Rebecca’s parents consulted with a neurologist, and Rebecca received the treatment she needed to get her on a path to recovery. PANDAS/PANS is a commonly misunderstood disorder in… Continue reading The Road to PANDAS Diagnosis: Rebecca Nowicki’s Story
Managing a PANDAS/PANS diagnosis can be challenging. Learn more about the steps you need to take after your child receives a diagnosis. If someone in your family is affected by PANDAS or PANS, you likely faced a long journey searching for answers about your child’s symptoms. You’ve also likely spent lots of time researching the… Continue reading What To Do After a PANDAS Diagnosis
Research and awareness of PANDAS/PANS are essential to equipping providers with the best medical knowledge to support patients and their families. Recent findings unveiled crucial knowledge about the nature of autoimmune basal ganglia encephalitis. New Columbia University research1 demonstrates how the immune response to strep throat triggers the blood–brain barrier breakdown in post-infectious basal ganglia… Continue reading How Immune Response to Strep Infection Triggers BGE Breakdown of Blood–Brain Barrier
When was PANDAS discovered, and why was the PANDAS Network founded? PANDAS/PANS is relatively new in the medical world. There are many misunderstandings when it comes to these conditions, which leads to misdiagnosis and stigma. We’re here to shed some light on the history of PANDAS disease and offer some background on the PANDAS Network,… Continue reading History of PANDAS/PANS and PANDAS Network
Learn what causes this often misdiagnosed childhood autoimmune disease and understand your diagnosis and treatment options.
A PANDAS diagnosis relies heavily on symptom presentation. Our checklist can help guide you. Pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) present as neurological, mental and physical disturbances following infection with streptococcal-A, commonly known as strep throat. It is believed that PANDAS is an autoimmune disorder, and the strep bacteria causes the immune… Continue reading PANDAS Symptoms Checklist
With all the unknowns, it can be difficult for PANDAS families to navigate this complex combination of diseases. As the COVID-19 pandemic continues to affect our daily lives, conflicting information from different sources has become common. It has become increasingly difficult to tell which guidelines the average person should follow, let alone what people with… Continue reading What Do PANDAS Families Need To Know About COVID-19?