Written by Sierra Gellhorn A four-year-old boy (my son, Max) developed severe tics within a few days of being diagnosed with his second case of strep throat. He had also begun to exhibit sudden behavioral changes such as severe separation anxiety, insomnia, hyperactivity, and aggression. My son’s PCP agreed with me that it was “very… Continue reading A Scary Strep Onset Calms with Support & Guidance, Mothers Helping Mothers
Author: Stacie
‘Unbelievable pain and suffering’: How a common throat infection can rewire children’s brains
BBC August 2025 Jamie Ducharme Read full article here
Joint Statement Concerning AAP PANS Report
New Strep Research
Read more here Read the full research study here
Determined Action Averts Tragic Consequences, Emeline age 6
It was early October in 2023 when we first noticed subtle signs that something was not quite right with our then 6-year-old daughter, Emeline. Once a goofy, fun loving and sensitive girl who did well in school, social situations and liked gymnastics was now acting very differently. It started with having a hard time making… Continue reading Determined Action Averts Tragic Consequences, Emeline age 6
What do you do when the child you love starts to disappear before your eyes?
Spring of 2021, our 7 year old daughter came home from school acting like a different person. She was shy and fearful all of a sudden. Believing it was a mental health issue, we started working with a therapist. But as the weeks passed, her symptoms—crippling anxiety, obsessive thoughts, and behaviors—grew worse, unimproved by traditional… Continue reading What do you do when the child you love starts to disappear before your eyes?
Rooted in Reseilience: A Journey of Growth with PANDAS and PANS
Watch the video here A Short Film Produced by StoryQ Rooted in Resilience: A Journey of Growth with PANDAS and PANS is a moving short documentary chronicling the lives of three teenagers—Jordana, Trent, and Kendall—over the course of three years (2020 – 2023) as they share their journey of living with and recovering from PANDAS (Pediatric… Continue reading Rooted in Reseilience: A Journey of Growth with PANDAS and PANS
Rooted in Resilience: A Journey of Growth with PANDAS and PANS
A Short Film Produced by StoryQ Rooted in Resilience: A Journey of Growth with PANDAS and PANS is a moving short documentary chronicling the lives of three teenagers—Jordana, Trent, and Kendall—over the course of three years (2020 – 2023) as they share their journey of living with and recovering from PANDAS (Pediatric Autoimmune Disorder Associated… Continue reading Rooted in Resilience: A Journey of Growth with PANDAS and PANS
2024 New Perspectives on Streptococcal Infections and Related Disease
The 2nd edition of the online open-access book is complete and can be found at: https://www.ncbi.nlm.nih.gov/books/NBK587111 Two chapters related to PANDAS, PANS, and Sydenham Chorea are listed below: Susan Swedo, Chandra M. Menendez, and Madeleine W. Cunningham. Created: July 7, 2024; Last Update: September 13, 2024. Madeleine W. Cunningham and Christine A. Kirvan. Created: March… Continue reading 2024 New Perspectives on Streptococcal Infections and Related Disease
Update on the PANS Program 2023
Check out the update here