Blog Blog Home » Blog Blog The latest insights about PANDAS at your fingertips. Kai and Brielle’s Story: How a Family Coped With Nearly a Decade of PANDAS Widman family. Kai is on the far left, Brielle is on the far right. Micaela Widman’s children Kai and Brielle both suffered for years from undiagnosed autoimmune encephalomyelitis. Learn how they finally received life changing diagnoses … Families With PANDAS: 5 Ways to Cope and Practice Self-Care Dealing with PANDAS affects the whole family. Focusing on mental health and wellness for caregivers, parents and siblings may not be easy. But it is a necessary step to overcoming the long-term effects of this … A Mother’s Thoughts By Stacie Manna “PANDAS mom” is a title I would not wish on anyone. PANDAS, standing for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections, is a disorder estimated to affect 1 in 200 children. It … Is PANDAS Hereditary or Genetic? Research and studies show a strong link between PANDAS/PANS and genetic or hereditary factors. While researchers haven’t found any one specific gene directly linked to the diseases, there are several family factors that may provide … A Father’s Thoughts The entire family system is affected by PANDAS. I have identified some of the key issues and symptoms from the histories provided by the parents, as well as, from those that my wife and I … A Family’s Long Journey With PANDAS: Fighting for Recognition and Support In the past five years, Stacie, her husband Peter, and their two children, Collin and Autumn, have been on a long journey with PANDAS. At first they didn’t even know what PANDAS was and it … Amanda’s PANDAS Journey: From Misdiagnosis to Recovery Amanda was diagnosed with PANDAS when she was 14 after six months of seeing multiple specialists who either misdiagnosed her or dismissed her symptoms. Her symptoms largely resolved when she was a junior in high … Myths and Misinformation About PANDAS PANDAS and PANS are commonly misunderstood disorders that are often stigmatized in the medical community. Learn the truths about PANDAS as we debunk top PANDAS/PANS myths in this blog post. As a parent or caregiver of … How To Find the Right Doctor for PANDAS Diagnosing PANDAS can take time, especially when working with providers unfamiliar with the disorder. Continue reading to learn how to find the right doctor who treats PANDAS syndrome. Parents know the PANDAS journey is challenging, whether … 1 2 3
