Blog Blog Home » Blog Blog The latest insights about PANDAS at your fingertips. A Father’s Thoughts The entire family system is affected by PANDAS. I have identified some of the key issues and symptoms from the histories provided by the parents, as well as, from those that my wife and I … Is PANDAS Hereditary or Genetic? Research and studies show a strong link between PANDAS/PANS and genetic or hereditary factors. While researchers haven’t found any one specific gene directly linked to the diseases, there are several family factors that may provide … Myths and Misinformation About PANDAS PANDAS and PANS are commonly misunderstood disorders that are often stigmatized in the medical community. Learn the truths about PANDAS as we debunk top PANDAS/PANS myths in this blog post. As a parent or caregiver of … Amanda’s PANDAS Journey: From Misdiagnosis to Recovery Amanda was diagnosed with PANDAS when she was 14 after six months of seeing multiple specialists who either misdiagnosed her or dismissed her symptoms. Her symptoms largely resolved when she was a junior in high … How To Find the Right Doctor for PANDAS Watch Katelyn’s GoFundMe Video Diagnosing PANDAS can take time, especially when working with providers unfamiliar with the disorder. Continue reading to learn how to … IVIG Treatment Shows Promise for 55 PANDAS Patients in New Clinical Study from Italy Italian researchers conducted a study to document the clinical experience of PANDAS patients receiving IVIG treatment. The results show promise for the future of IVIG’s role in treating patients. In a 2020 study by Pavone et … Biological Markers for PANDAS and PANS Watch Katelyn’s GoFundMe Video Although there is no 100% definitive test for PANDAS/PANS, biological markers can help physicians determine the root cause of your … The Road to PANDAS Diagnosis: Rebecca Nowicki’s Story Rebecca Nowicki was six years old when her behavior dramatically changed following multiple strep infections. After learning about the resources, clinicians and support groups from PANDAS Network, Rebecca’s parents consulted with a neurologist, and Rebecca … PANDAS Network: 2021 in Review The PANDAS Network has been busy this year. We created a PANDAS/PANS Research Roadmap to improve global research collaboration. Our brand-new website got launched. We organized a CME conference with the largest New York State … 1 2 3 4
