I’m trapped. It hurts more than anything I have ever felt. No matter how hard I try, I can’t escape myself. I scream again, unable to see or hear anyone around me. I fall, not feeling the pressure as I hit the ground. Everything is blurry- I grab onto whatever I can feel; anything to… Continue reading Alessia’s PANDAS Story
Category: Cat 1
Reducing OCD Symptoms in Children with PANDAS/PANS
For children with PANDAS/PANS with OCD, ERP therapy can help them reduce their OCD symptoms. PANDAS Network is partnering with NOCD to make virtual ERP available. NOCD accepts many insurance plans and is also offering a reduced rate of $100 per session for people not using insurance, through the end of May. NOCD could also… Continue reading Reducing OCD Symptoms in Children with PANDAS/PANS
100s of PANS Families Create Change, 3 New Nonprofits & 80% to Our Research Funding Goal
Read our latest newsletter here
NIMH Awards Yale $3 Million to PANDAS-PANS Research, Invasive Group A Strep Surveillance, and End-of-Year Match
Read our latest newsletter here
Read our 2022 Announcement of Grant Awards, Major Donors, & More
Read about the grand awards, major donors, and more on our latest newsletter here
Treating Strep Throat to Prevent PANDAS & Other Health Issues
Strep throat is incredibly common among children and young teens. In fact, 30% of sore throat cases in children aged 5 to 15 are caused by strep compared with 10% of cases in adults. Strep is so common that it can be easy to assume an emerging infection is just another sore throat that will… Continue reading Treating Strep Throat to Prevent PANDAS & Other Health Issues
Emily’s PANDAS Story
She developed PANS in 2020 and is healing. She is a high school freshman whose diagnosis was unclear and treatment was difficult to find. Today she is healing and happy to share her journey with others. Emily was a typical kid. She had a typical birth and did all of the things that kids do like… Continue reading Emily’s PANDAS Story
New Research Identifies Key Differences Between Sydenham Chorea and PANDAS
A recent study has helped clarify how dopamine receptors and autoantibodies help identify symptoms in children with Sydenham chorea and PANDAS. Dr. Madeleine Cunningham and Dr. Chandra Menendez are authoring a study outlining how autoantibody activation of D1 and D2 dopamine receptors may help create new diagnostic criteria for PANDAS. A new study authored by… Continue reading New Research Identifies Key Differences Between Sydenham Chorea and PANDAS
Katy’s PANDAS Journey
Katy began experiencing PANDAS symptoms when she was 7 years old. Thanks to a school nurse, she was referred to a specialist who was able to get her the treatment she needed to start down the path to recovery. Today she is a recent high school graduate on the way to a bright future starting… Continue reading Katy’s PANDAS Journey
We See You, Dad!
By: Stacie Manna The father’s role in a PANDAS Family is one that can make him feel alone and invisible, some days more than others. This Father’s Day, I am here to remind you, dads, how important you are. We see you, feel you, and have not forgotten about you. PANDAS is a family illness… Continue reading We See You, Dad!