Our PANDAS/PANS Story

After a strep outbreak in their household, Melissa’s 12-year-old son John began experiencing severe depression and symptoms of numerous psychiatric disorders. Following a 3-year journey to get an accurate diagnosis and effective treatment, both John and his younger sister Elizabeth were diagnosed with PANDAS. Read Melissa’s PANDAS story below, as told in her own words… Continue reading Our PANDAS/PANS Story

New Research Identifies Key Differences Between Sydenham Chorea and PANDAS

A recent study has helped clarify how dopamine receptors and autoantibodies help identify symptoms in children with Sydenham chorea and PANDAS. Dr. Madeleine Cunningham and Dr. Chandra Menendez are authoring a study outlining how autoantibody activation of D1 and D2 dopamine receptors may help create new diagnostic criteria for PANDAS. A new study authored by… Continue reading New Research Identifies Key Differences Between Sydenham Chorea and PANDAS

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Katy’s PANDAS Journey

Katy began experiencing PANDAS symptoms when she was 7 years old. Thanks to a school nurse, she was referred to a specialist who was able to get her the treatment she needed to start down the path to recovery. Today she is a recent high school graduate on the way to a bright future starting… Continue reading Katy’s PANDAS Journey

We See You, Dad!

By: Stacie Manna The father’s role in a PANDAS Family is one that can make him feel alone and invisible, some days more than others. This Father’s Day, I am here to remind you, dads, how important you are. We see you, feel you, and have not forgotten about you. PANDAS is a family illness… Continue reading We See You, Dad!

PANDAS Treatment Options

Starting treatment for PANDAS early on is one of the most effective ways to manage symptoms and put the disease into remission. Below we outline some of the main PANDAS treatment options that are currently available. Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) occur after an infection,… Continue reading PANDAS Treatment Options

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How to Get 504 Accommodations for Children With PANDAS

If your child’s PANDAS symptoms are impacting their ability to succeed in school, a 504 accommodations plan may help. We break down everything you need to know to set up accommodations with your child’s school. One of the chief challenges of PANDAS is how it affects children’s ability to manage during the school day. That… Continue reading How to Get 504 Accommodations for Children With PANDAS

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Kai and Brielle’s Story: How a Family Coped With Nearly a Decade of PANDAS

Micaela Widman’s children Kai and Brielle both suffered for years from undiagnosed autoimmune encephalomyelitis. Learn how they finally received life changing diagnoses and treatment. Micaela Widman and her husband Jerad live in Overland Park, Kansas. They have six children: Kai (22), Jace (20), Kale (18), Sterling (16), Brielle (14), and Brenna (10). From 2011 to… Continue reading Kai and Brielle’s Story: How a Family Coped With Nearly a Decade of PANDAS

Families With PANDAS: 5 Ways to Cope and Practice Self-Care

Dealing with PANDAS affects the whole family. Focusing on mental health and wellness for caregivers, parents and siblings may not be easy. But it is a necessary step to overcoming the long-term effects of this disease. A child experiencing PANDAS may feel confused, overwhelmed and scared. We certainly want to support our children through these… Continue reading Families With PANDAS: 5 Ways to Cope and Practice Self-Care

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A Mother’s Thoughts

By Stacie Manna  “PANDAS mom” is a title I would not wish on anyone. PANDAS, standing for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections, is a disorder estimated to affect 1 in 200 children. It is common for a child to go to sleep one night and wake up the next day as if… Continue reading A Mother’s Thoughts