PANDAS and PANS are commonly misunderstood disorders that are often stigmatized in the medical community. Learn the truths about PANDAS as we debunk top PANDAS/PANS myths in this blog post. As a parent or caregiver of a child with PANDAS/PANS, you face a long journey looking for explanations, guidance and support for your child’s disorder.… Continue reading Myths and Misinformation About PANDAS
Category: Cat 1
How To Find the Right Doctor for PANDAS
Diagnosing PANDAS can take time, especially when working with providers unfamiliar with the disorder. Continue reading to learn how to find the right doctor who treats PANDAS syndrome. Parents know the PANDAS journey is challenging, whether they have been walking down this road for weeks, months or even years. If you recently found out about… Continue reading How To Find the Right Doctor for PANDAS
IVIG Treatment Shows Promise for 55 PANDAS Patients in New Clinical Study from Italy
Italian researchers conducted a study to document the clinical experience of PANDAS patients receiving IVIG treatment. The results show promise for the future of IVIG’s role in treating patients. In a 2020 study by Pavone et al., Italian researchers found significant symptom reduction in children with PANDAS/PANS. The article, “PANS/PANDAS: Clinical Experience in IVIG Treatment… Continue reading IVIG Treatment Shows Promise for 55 PANDAS Patients in New Clinical Study from Italy
Biological Markers for PANDAS and PANS
Although there is no 100% definitive test for PANDAS/PANS, biological markers can help physicians determine the root cause of your child’s symptoms. Learn more about the various blood tests and biomarkers that may support a PANDAS/PANS diagnosis. PANDAS/PANS is a clinical diagnosis based on a collection of signs, symptoms, medical history and laboratory findings that… Continue reading Biological Markers for PANDAS and PANS
PANDAS Network: 2021 in Review
The PANDAS Network has been busy this year. We created a PANDAS/PANS Research Roadmap to improve global research collaboration. Our brand-new website got launched. We organized a CME conference with the largest New York State healthcare network, Northwell Health. And we did all this and more while navigating a pandemic. As always, we are dedicated… Continue reading PANDAS Network: 2021 in Review
The Road to PANDAS Diagnosis: Rebecca Nowicki’s Story
Rebecca Nowicki was six years old when her behavior dramatically changed following multiple strep infections. After learning about the resources, clinicians and support groups from PANDAS Network, Rebecca’s parents consulted with a neurologist, and Rebecca received the treatment she needed to get her on a path to recovery. PANDAS/PANS is a commonly misunderstood disorder in… Continue reading The Road to PANDAS Diagnosis: Rebecca Nowicki’s Story
What To Do After a PANDAS Diagnosis
Managing a PANDAS/PANS diagnosis can be challenging. Learn more about the steps you need to take after your child receives a diagnosis. If someone in your family is affected by PANDAS or PANS, you likely faced a long journey searching for answers about your child’s symptoms. You’ve also likely spent lots of time researching the… Continue reading What To Do After a PANDAS Diagnosis
How Immune Response to Strep Infection Triggers BGE Breakdown of Blood–Brain Barrier
Research and awareness of PANDAS/PANS are essential to equipping providers with the best medical knowledge to support patients and their families. Recent findings unveiled crucial knowledge about the nature of autoimmune basal ganglia encephalitis. New Columbia University research1 demonstrates how the immune response to strep throat triggers the blood–brain barrier breakdown in post-infectious basal ganglia… Continue reading How Immune Response to Strep Infection Triggers BGE Breakdown of Blood–Brain Barrier
History of PANDAS/PANS and PANDAS Network
When was PANDAS discovered, and why was the PANDAS Network founded? PANDAS/PANS is relatively new in the medical world. There are many misunderstandings when it comes to these conditions, which leads to misdiagnosis and stigma. We’re here to shed some light on the history of PANDAS disease and offer some background on the PANDAS Network,… Continue reading History of PANDAS/PANS and PANDAS Network
What Is PANDAS? The Latest Research and Treatment Options
Learn what causes this often misdiagnosed childhood autoimmune disease and understand your diagnosis and treatment options.