Anonymous Survey for Parents of Children with PANS/PANDAS

What is the psychological and physical impact of the pandemic on children with PANS/PANDAS and their families? Massachusetts General Hospital is inviting you to take part in a 40-60 minute survey assessing how PANS/PANDAS symptoms are affected by the coronavirus pandemic. This survey is completely anonymous. It will ask you questions regarding your child’s experiences with the pandemic, your relationship …

Discover magazine April 2017: 3 New Discoveries in PANDAS-PANS

“Hidden Invaders.  Infections can trigger immune Attacks on Kids’ brains, provoking devastating psychiatric disorders,”  by medical writer, Pamela Weintraub, outlines the history of PANDAS-PANS and new BREAKTHROUGH research that shows the presence of three new discoveries: autoantibodies in the brain (Cunningham, Univ of OK),immune cells that strep inspires, TH17 open the barrier to the brain (Agalliu, Columbia Univ), and,  new …

Newsletter

May 2021 : Advances in PANDAS: Yale, Columbia, Sydney (Australia) CLICK HERE FOR NEWSLETTER March 2021 : Resending! Please Reply to Harvard PANDAS/PANS COVID Survey – Participate in an MGH Research Survey of Impact on Your Family’s Life CLICK HERE FOR NEWSLETTER February 2021 : PANDAS/PANS COVID Survey – Participate in an MGH Research Survey of Impact on Your Family’s …

PPN for Medical Professionals

PANDAS Physicians Network Become a Member Physicians and medical professionals are strongly encouraged to become members of Pandas Physicians Network. The Pandas Physicians Network (“PPN”) (FBSI) is an organization that is dedicated to helping medical professionals better understand PANDAS and PANS through real-time information and networking. Membership in the PANDAS Physicians Network carries certain benefits that allows the practitioner, researcher …

Moleculera Labs

Science of the brain is captured by the Cunningham Panel.  Anti-neuronal, or misbehaving antibodies, are found in PANDAS-PANS patients.  If a patient doubts their diagnosis AND/OR wants to be sure their healing is occurring — this test will show what is present in the brain. The test can be used at various points during treatment to ensure proper trajectory of …

Speaker Series

Stanford Medicine Online CME Course on Presentation and Management of PANS by Margo Thienemann, MD (CME credits available online through December 2020) The Foundation for Children with Neuroimmune Disorders CME Series with Jennifer Frankovich, MD, Richard Frye, MD, PhD, Dritan Agalliu, PhD, Kiki Chang, MD (live webinar CME series in January, March, May, August) PANDAS and PANS with the Experts …