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Helpful Websites

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Helpful Websites

PANDAS Physicians Network

PPN is an organization that is dedicated to helping medical professionals better understand PANDAS and PANS through real-time information and networking. PPN Guidelines for Diagnostics and Therapeutics are developed by PPN committees and special advisors from the top academic medical institutions in the United States, including Harvard, Yale, Stanford, Columbia, Georgetown, NIH, and NIMH. Members of this elite group have worked with, treated, or studied the patients or aspects of the disorder. Because PANDAS & PANS are interdisciplinary disorders, all the relevant disciplines are represented on the PPN committees and the special advisory council.

My Kid is Not Crazy Documentary

“My Kid is Not Crazy,” a film by Tim Sorel, tracks the journey of six children and their families as they become tangled in the nightmare of a medical system heavily influenced by the pharmaceutical industry. Here it’s common for a caregiver to prescribe a young child with a Selective Serotonin Uptake Inhibitor (SSRI) but hesitate to prescribe an antibiotic to counteract a potential infectious-based trigger. For some of these kids, what happens after several years is shocking and sad.

International OCD Foundation

The mission of the International OCD Foundation is to help everyone affected by obsessive compulsive disorder (OCD) and related disorders to live full and productive lives. Our aim is to increase access to effective treatment, end the stigma associated with mental health issues, and foster a community for those affected by OCD and the professionals who treat them.

Rare Disease Tool Kits

RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

The Balanced Mind Foundation

The Balanced Mind Parent Network (BMPN), a program of the Depression and Bipolar Support Alliance (DBSA), guides families raising children with mood disorders to the answers, support, and stability they seek.

On Our Sleeves: The Movement to Transform Children's Mental Health

On Our Sleeves has evidence-based resources to help kids cope during this challenging time, provided by the experts at Nationwide Children's Hospital

The Foundation for Children with Neuroimmune Disorders

Pediatric Research and Advocacy Initiative

Immune Deficiency Foundation

60 Digital Resources for Mental Health

The Alliance to Solve PANS and Immune-Related Encephalophathies

International Websites

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PANDAS Canada

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PANDAS Italy

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PANDAS Poland

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PANDAS Sweden

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PANDAS United Kingdom

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PANS PANDAS United Kingdom