PANDAS Physicians Network
NIMH SUPPORT for providers
If you are a provider that needs specific questions answered about a PANDAS or PANS patient, the NIMH has a resource to help you. Contact the NIMH at OCDresearch@mail.nih.gov and someone will get back to you. They cannot provide medical advice over the internet, but can help with specific questions and concerns. They can also help with referrals.
The Cunningham Panel is the only test of its kind in the world that can help identify whether an autoimmune dysfunction may be causing a person's neuropsychiatric symtpoms. The test measures the level of antibodies attacking certain proteins in the brain, causing inflammation and abnormal behaviors. High levels indicate that an individual may have an infection-induced autoimmune disorder.
2017 JCAP Treatment Guidelines
Clinical Management of PANS: Part I–Psychiatric and Behavioral Interventions
(Thienemann Margo, Murphy Tanya, Leckman James, Shaw Richard, Williams Kyle, Kapphahn Cynthia, Frankovich Jennifer, Geller Daniel, Bernstein Gail, Chang Kiki, Elia Josephine, and Swedo Susan. Journal of Child and Adolescent Psychopharmacology. July 2017.)
Clinical Management of PANS: Part II—Use of Immunomodulatory Therapies
(Frankovich Jennifer, Swedo Susan, Murphy Tanya, Dale Russell C., Agalliu Dritan, Williams Kyle, Daines Michael, Hornig Mady, Chugani Harry, Sanger Terence, Muscal Eyal, Pasternack Mark, Cooperstock Michael, Gans Hayley, Zhang Yujuan, Cunningham Madeleine, Bernstein Gail, Bromberg Reuven, Willett Theresa, Brown Kayla, Farhadian Bahare, Chang Kiki, Geller Daniel, Hernandez Joseph, Sherr Janell, Shaw Richard, Latimer Elizabeth, Leckman James, Thienemann Margo, and PANS/PANDAS Consortium. Journal of Child and Adolescent Psychopharmacology. July 2017.)
Clinical Management of PANS: Part III—Treatment and Prevention of Infections
Cooperstock Michael S., Swedo Susan E., Pasternack Mark S., Murphy Tanya K., and for the PANS PANDAS Consortium. Journal of Child and Adolescent Psychopharmacology. July 2017.)