Helpful Websites

    Helpful Websites

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Learn more about PANDAS/PANS and other related disorders and organizations from the list of helpful websites below.

PANDAS Physicians Network

PPN is dedicated to helping medical professionals better understand PANDAS/PANS through real-time information and networking. PPN Guidelines for Diagnostics and Therapeutics are developed by PPN committees and special advisors from the top academic medical institutions in the U.S., including Harvard, Yale, Stanford, Columbia, Georgetown, NIH and NIMH.

International OCD Foundation

The mission of the International OCD Foundation is to help everyone affected by obsessive-compulsive disorder and related disorders live full, productive lives. We aim to increase access to effective treatment, end stigma associated with mental health issues and foster a community for those affected by OCD and their treatment professionals.

National Institute of Mental Health

The National Institute of Mental Health (NIMH) is the lead federal agency for research on mental disorders. NIMH is one of the 27 Institutes and Centers that make up the National Institutes of Health (NIH), the largest biomedical research agency in the world. NIH is part of the U.S. Department of Health and Human Services (HHS).

The Balanced Mind Foundation

The Balanced Mind Parent Network (BMPN), a program of the Depression and Bipolar Support Alliance (DBSA), guides families raising children with mood disorders to the answers, support, and stability they seek.

Our pediatric practice’s goal is to provide the best possible medical care to our patients for a reasonable fee. We strictly adhere to our patient schedule, and our patients spend more time with our doctor than in our waiting rooms. We are fee-for-service and participate in a limited number of PPO programs.

On Our Sleeves

On Our Sleeves offers evidence-based resources to help kids cope during this challenging time. Resources are provided by the experts at Nationwide Children’s Hospital.

Immune Deficiency Foundation

The Immune Deficiency Foundation improves the diagnosis, treatment and quality of life of people affected by primary immunodeficiency by fostering a community empowered by advocacy, education and research. There are approximately 250,000 people diagnosed with PI in the U.S., and thousands more go undetected.

Rare Disease Tool Kits

RARE Toolkits provide individuals with usable information on various topics related to living with or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders who have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

Social Work License Map

For over a decade, 2U, a global leader in education technology, has been a trusted partner and brand steward of great universities. 2U builds, delivers and supports hundreds of digital and in-person educational offerings, including degrees, professional certificates, Trilogy-powered boot camps and GetSmarter short courses.

New England PANS/PANDAS Association

The New England PANS/PANDAS Association is a group of parent and medical volunteers from various states across New England focused on raising awareness of Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections (PANDAS), and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS). We strive to support the medical community and caregivers in their efforts to heal and take care of children with PANS/PANDAS.

The JBC Foundation

JBC’s mission is to provide hope, health and support to children and young adults suffering from PANS and PANDAS as well as their families. They will do this by offering monetary grants that help eligible children with PANS/PANDAS receive proper diagnosis and treatment. Additionally, they aim to bring education and awareness to caregivers, schools, physicians, and communities to bring a new level of understanding to these illnesses.

Northwest PANDAS/PANS Network

Northwest PANDAS/PANS Network is a nonprofit serving those in the Pacific Northwest with PANDAS/PANS/AE and their families. They are committed to raising awareness, providing education and resources, advocating for legislative changes, and supporting local research.

The Alex Manfull Fund

The Alex Manfull Fund supports awareness, education, and research to further understand the incidence, etiology, and best treatment of post-infectious neuroimmune disorders (aka PANDAS, PANS, Autoimmune Encephalitis, and Basal Ganglia Encephalitis) with an emphasis on their manifestation in Adolescents and Young Adults. Our ultimate goal is that no life ever again be cut short – or interrupted – by any post-infectious neuroimmune disorder.


Aspire’s mission is to improve the lives of children and adults affected by PANS/PANDAS and other immune-related encephalopathies by closing the gap between symptom onset and access to treatment and support.

PANDAS International Websites


PANS PANDAS UK is a charity established and registered in May 2018 by a dedicated group of parents with children affected by these conditions. The charity is determined to make a difference in how these conditions are understood by the medical profession and the general public.


This organization offers a membership support network for patients and their families. SANE collects and disseminates information on PANS/PANDAS or other suspected neuroinflammatory disorders, pursues research and works to make early diagnosis and treatment available to patients and their families in Sweden and the world.

Children’s e-Hospital (PANDAS UK)

The Children’s e-Hospital offers access to child health experts and lots of information to help you as parents look after your children’s health. With our free resources, HOTPOD® vital signs monitor, children’s first aid kit and more, we give every child access to the best medical care.


Inflamed Brain Alliance aims to lighten your heavy burden by helping you navigate pathways to clinical care and follow-through on care.


This website and blog are run by a mother dedicated to sharing information on PANDAS, PANS and ASD symptoms, diagnostic criteria and support, as well as PANDAS Natural Treatment – A Functional Approach.


PANDAS Italia ODV is a voluntary organization born in Empoli in August 2010 thanks to two parents and close friends present for the tiring journey that led to a complete remission of PANDAS symptoms in a child treated with effective therapies.

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