Helpful Websites

    Helpful Websites

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Learn more about PANDAS/PANS and other related disorders and organizations from the list of helpful websites below.

PANDAS Physicians Network

PPN is dedicated to helping medical professionals better understand PANDAS/PANS through real-time information and networking. PPN Guidelines for Diagnostics and Therapeutics are developed by PPN committees and special advisors from the top academic medical institutions in the U.S., including Harvard, Yale, Stanford, Columbia, Georgetown, NIH and NIMH.

International OCD Foundation

The mission of the International OCD Foundation is to help everyone affected by obsessive-compulsive disorder and related disorders live full, productive lives. We aim to increase access to effective treatment, end stigma associated with mental health issues and foster a community for those affected by OCD and their treatment professionals.

National Institute of Mental Health

The National Institute of Mental Health (NIMH) is the lead federal agency for research on mental disorders. NIMH is one of the 27 Institutes and Centers that make up the National Institutes of Health (NIH), the largest biomedical research agency in the world. NIH is part of the U.S. Department of Health and Human Services (HHS).

The Balanced Mind Foundation

The Balanced Mind Parent Network (BMPN), a program of the Depression and Bipolar Support Alliance (DBSA), guides families raising children with mood disorders to the answers, support, and stability they seek.

WebPediatrics.com

Our pediatric practice’s goal is to provide the best possible medical care to our patients for a reasonable fee. We strictly adhere to our patient schedule, and our patients spend more time with our doctor than in our waiting rooms. We are fee-for-service and participate in a limited number of PPO programs.

On Our Sleeves

On Our Sleeves offers evidence-based resources to help kids cope during this challenging time. Resources are provided by the experts at Nationwide Children’s Hospital.

Immune Deficiency Foundation

The Immune Deficiency Foundation improves the diagnosis, treatment and quality of life of people affected by primary immunodeficiency by fostering a community empowered by advocacy, education and research. There are approximately 250,000 people diagnosed with PI in the U.S., and thousands more go undetected.

Rare Disease Tool Kits

RARE Toolkits provide individuals with usable information on various topics related to living with or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders who have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices.

Social Work License Map

For over a decade, 2U, a global leader in education technology, has been a trusted partner and brand steward of great universities. 2U builds, delivers and supports hundreds of digital and in-person educational offerings, including degrees, professional certificates, Trilogy-powered boot camps and GetSmarter short courses.

My Kid Is Not Crazy

“My Kid is Not Crazy,” a film by Tim Sorel, tracks the journey of six children and their families as they become tangled in the nightmare of a medical system influenced by the pharmaceutical industry. Here, it’s common for a caregiver to prescribe a child a Selective Serotonin Reuptake Inhibitor, or SSRI, but hesitate to prescribe an antibiotic to counteract a potential infection-based trigger. For some of these kids, what happens after several years is shocking and sad.

PANDAS International Websites

PANS PANDAS UK

PANS PANDAS UK is a charity established and registered in May 2018 by a dedicated group of parents with children affected by these conditions. The charity is determined to make a difference in how these conditions are understood by the medical profession and the general public.

SANE (PANDAS Sweden)

This organization offers a membership support network for patients and their families. SANE collects and disseminates information on PANS/PANDAS or other suspected neuroinflammatory disorders, pursues research and works to make early diagnosis and treatment available to patients and their families in Sweden and the world.

Children’s e-Hospital (PANDAS UK)

The Children’s e-Hospital offers access to child health experts and lots of information to help you as parents look after your children’s health. With our free resources, HOTPOD® vital signs monitor, children’s first aid kit and more, we give every child access to the best medical care.

PANDAS Canada

Has your child been recently diagnosed with PANDAS, or have you been struggling with recurrent episodes of OCD or tics? Learn what you can do and where to go to find help in Canada.

PANDAS Poland

This website and blog are run by a mother dedicated to sharing information on PANDAS, PANS and ASD symptoms, diagnostic criteria and support, as well as PANDAS Natural Treatment – A Functional Approach.

PANDAS Italia

PANDAS Italia ODV is a voluntary organization born in Empoli in August 2010 thanks to two parents and close friends present for the tiring journey that led to a complete remission of PANDAS symptoms in a child treated with effective therapies.

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