Resources For School Staff and Parents
Teacher Resources by Patricia Rice Doran, Ed.D.:
- PANDAS and PANS: Essential Facts for Teachers
- Families’ Experiences with PANDAS & Related Disorders (text)
- Families’ Experiences with PANDAS & Related Disorders (visual)
Considerations Regarding Academic Accommodations/Compensatory Strategies, and Services for Students with PANDAS/PANS ©Dr. Jamie Candelaria-Greene 2014 (posted with permission of Dr.Candelaria-Greene)
AOTA PANDAS OT Handout Copyright 2011 by the American Occupational Therapy Association. All rights reserved. This material may be copied and distributed for personal or educational uses without written consent. For all other uses, contact firstname.lastname@example.org.
Sample Letters for Families
You can use these frameworks to craft a letter for the teachers, administrators and staff who interact with your child at school. Copy and paste the text, then customize them for your personal use.
- Letter to School while in a PANDAS Exacerbation
- Letter to School while in Remission
- Letter Requesting Notification of Strep Exposure from Classmates
Websites and General Articles
- OCD Education Station Coping with OCD in the School
- Wrightslaw Special Education Advocacy and Law
- Preparing the School for Your Child with Tourette Syndrome Tips for Tics in the School Environment
- IEP vs 504
- Little known disorder underscores education needs [Commentary]
Even if you don’t have a 504 Plan or IEP in place, you can still talk to the teacher(s) and administration about what would make school more comfortable for your child and for you.
Some suggestions are:
- Call the Principal and say you want to be notified when a classmate is absent due to strep. If there are siblings, you can request the same for their classes as well. The school will not be able to give you specific names due to privacy.
- Talk to the teacher about allowing frequent bathroom breaks if frequent urination is an issue. If you don’t discuss this, the teacher may have class rules about how often/when a child is allowed to use the bathroom.
- Establish a ‘code’ with the teacher. Perhaps if the child puts a certain object or piece of paper on their desk or the teacher’s desk, it will signal the teacher that the student is overwhelmed and needs a break from the classroom.
- Get permission for your child to use a water bottle in the classroom to prevent germ exposure from water fountains.
- Look back at older writing journals for possible handwriting changes. This may include margin drifts and legibility issues. These journals may be kept in the classroom.
Photo credit: NIMH